What a couple of days…

Oh what a couple of days………………..

Yesterday, I saw my new PA.  His name is Chris.  We chatted for a bit and I wowed him some with my medical history.  Barely got into it, so I figure I will wow him a lot more in the near future.  We discussed my possible kidney stone.  I did the whole pee in a cup thing and am waiting on the results call.  I hope he is going to call my cell phone and not the home phone cuz nothing is attached to the home phone number.   Anyhow, when he tapped my kidney area, I jumped.  We talked a whole lot about kidney stones and how the treatment plan goes.  Just waiting to hear from him now.

This morning was the nurse visit at my Cancer Doc’s office.  Got to visit with yet another nurse, who confirmed with us that there is nothing else to do to try to fix my falling blood numbers.  Platelets were back down to 39, WBD was 2.6, and Hemoglobin was 12.1, all down from where they were a month ago which was down from where they were a month before that.  Kind of disheartening to know there is nothing to do if they keep falling, until they fall far enough to warrant some action.  Teresa’s theory is that the marrow that used to be producing cancer cells stopped working all together and the good marrow is overtaxed.  As good of theory as any I have hear.  The problem is besides me being a bleeder, I also have like minimal ability to fight infections.  SUCKAGE.

This afternoon I went to my first physical therapy appointment with Todd.  Two new stretches and 20 minutes on a tens machine.  The stretches are pretty basic, I can do them, and I plan do them like he suggested.  I have nothing to say about the tens machine, it was 20 minutes of sitting there reading Facebook on my phone.   Todd seemed like a nice enough guy.  He asked pertinent questions and got to the point fairly quickly.  I liked that, more time to do stuff, less talk about it.  I have 2 appointments with him next week.  I will happily go, even though……

My mom is here to visit.  YAY.  I do not get to see her enough.  She came to visit for a whole week.  She is going to take us out to dinner two nights, once to HuHot and once to Famous Daves.  Beyond that we have nothing planned.  Teresa and I are not one to plan in advance.  Oh well.

The problem is I can’t sit out in the living room with my mom.  I can’t sit comfortably for any length of time right now.  Therapy today just made it worse it seems.  5 minutes sitting out there was all I could handle.  I did hook up her computer for her, so she has POGO to play.

Today was an eventful day for me for packages.  I got a new CD from Publisher’s Clearing House.  Another 70s music CD.  I like 70s music.

I also got my stuff from Amazon Prime Pantry.  Big heavy box.  Eventually tonight I will get around to unpacking it.

And finally I got my gizmos from Steam.  A game controller, and a thingy which puts my Steam game on the TV.  The controller was a necessity to play Rocket League and Mutant League Football Beta.

Mutant League Football is something I LOVED back on the Sega in its day.  I would play for hours on end.  Well, it seems they have updated the crap out of it and added a whole lot to it.  Release date is some time in October.  Right now is closed beta.  But open beta starts next week.  I haven’t hook up the controller yet or fired up the game, but I hope it’s as cool as the videos show it to be.

I’m hurting pretty bad right now and I haven’t even done my stretches yet.   No fair and no fun.  I really wish that my pain doc would have given me something beyond Flexeril to deal with my back hurting.  But I understand there is a huge push not to prescribe opiates, and he wants me to give physical therapy a real go.  So, that is what I am doing.  Giving physical therapy a go.  The prednisone trial just threw a wrench into getting physical therapy started weeks go so I would be better now.  Grrr.

Well, my pee in a cup test came back normal.  No blood to be found.  Chris has decided to go ahead with a CAT Scan to make sure I do or don’t have a kidney stone (You guys are getting a real time report on this).  I don’t know when this will happen yet, but hey, it’s all good I guess.  At least they are ordering it at the close Mercy Hospital, so we don’t have to drive all the way down town to the main Mercy Hospital.   Good thing we have good insurance cuz my life would be costing us a minor fortune right now.



Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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