Treatment Related Myleodysplasia

Well, I went to get the results of my bone marrow biopsy.  They turned it into a full appointment.  I was fine with that.  They did a blood draw (normal procedure) and my platelets were 28.  Apparently the 46 I got from the hospital was a mistake.  Dr. Wehbe says I have Treated Related Myelodysplasia or totally trashed bone marrow and there is nothing that can be done for it.  He has encouraged me to try Mayo Clinic and see if they have any idea.  The only treatment Teresa found online is Stem Cell Transplant and I am not a candidate for that (yet) cuz I am in remission from leukemia, and nothing else is wrong with me.

I filled out the form for an appointment at Mayo Clinic.  It was online.  Says they will call me within 3 days to set up an appointment.  They are my best hope.  At this point, they are my only hope.


My mood is still good.  Even though I am bummed.  Gotta love my stability meds.  If I let the above get to me too much I would probably be really upset and that achieves nothing.  So, mellow, happy Jeff is what I am gonna be.


I have decided to start a new D&D game (me being the DM) after the 1st of year.  I have 3 confirmed players as of now, I would 5 or 6, but I have time to find more.  It’s going to be Tuesday, Wednesday or Thursday night from 8pm to 10 pm Eastern time.  Yeah, so far I am the only Central time guy, so I have taken to quoting Eastern time.  As for right now, I don’t know what level players are gonna be, I am not sure where in my world I am gonna start them, not sure much about anything.  But I have a while to figure all that out and I have asked my players for opinions and desires.


I am still going to play in the every other Friday game, this being an off week.  Next week we (the players) need to gel as a group as opposed to a bunch of individuals.  Last week we really didn’t gel.  Someone (hopefully not me) needs to step up and take leadership (I’ll do it if they make me).  But even if we don’t gel and no one steps up, we will still have fun.  So, I guess it’s all good.


We were awakened this morning at 3:55am by Teresa’s work calling cuz of a big outage.  It’s now 11:18 and she is still working on it.  I am thankful that she is finally off the group phone call.  Trying to decide if it is nap time or food time.  Probably food then nap after I am done writing this blog.


My blood pressure is doing weird things.  It was really high at the biopsy, and totally normal today.  I don’t know if I should go back on blood pressure meds or not.  I probably should make an appointment with Chris my Physician Assistant (Doctor wannabe).  I have other tests that need to be done, that were due months and months ago.  But I have been pretty healthy (besides stupid platelets and that one major cold), so I haven’t went to see him.


I’m not into all of these, but some I will admit to.

Author: Jeff Campbell

I am a 47 year old dude, married to the most wonderful woman in the world. I am officially a 2 year survivor of AML Leukemia. I am crazy but love my life anyway.

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