TOO MUCH HYPE, NOT ENOUGH REALITY

We made it to Rochester on Sunday afternoon.   The trip up was totally uneventful.  It’s 4 hours of much of nothing thru BFE Iowa and BFE Minnesota.  Nothing to see here, move along.  A drive I hope to never have to do again.


Got up to at 8 to go to Mayo Clinic by 9, cuz the paper they sent me said be there by 9:30 and I am always early for everything if at all possible.  Get up to the counter and she goes, “Oh, your appointment isn’t til 10, we says 1/2 hour early for people to fill out paperwork.”  I had my paperwork filled out ahead of time.  So we sat for an hour while we waited for me to be called back.


I get called back by the nurse, she does the nursely things they do… blood pressure, temperature, height and weight.  Turns out I weight exactly what I have weighed for the last 6-8 months.  I was running a fever though, that sparked some interest from her.  She asked a bunch of questions and punched a bunch of stuff into the computer.  Then she said the doctor would be in shortly.


A half hour later, the doctor comes in (Not saying his name, cuz 1 it will mean nothing to you and 2 I don’t want any chance of a slander issue and 3 I have more class than that).  He tells me a little about MDS and then proceeds to tell me they won’t do anything for me until I get significantly worse.  Translation for those that need it, they won’t do anything for me unless I am dying.  He used phrases like Massive Bruising, Excessive Bleeding or Consecutive Infections… any of which is potentially deadly to me.  I was stunned.  The great Mayo Clinic would do NOTHING for me.  BAH.


The he left and came back 10 minutes later with the doc in charge in tow.  Who said exactly the same thing.  I said, I was hoping for a more proactive approach to fixing my platelet issue, not a reactive one to getting deathly ill.  He just smiled and said that is what they do.


Needless to say, I was not happy.  But they ordered a blood test so I had to wait at the exit desk for a few minutes, the first doctor runs up with a release form in his hand to have my bone marrow biopsy sample sent to Mayo so their pathologists can have a look.  By this time I just wanted out of there, so I signed.


Then I headed to where they do the blood draws.  It’s a huge room with 100s of people waiting to have their blood drawn.  You wait for your name to be called to a specific door and then you go.  We waited there about 30 minutes before my name was called.  She took blood from my one good vein and proceeded to start wrapping my arm in gauss.  I asked “Do you have any cohban ( the springy stuff they wrap around blood draws for people with bleeding disorders )?”, she replies they don’t use that stuff here.  DOH.  Well, at least she wrapped the gauss tight enough to stop the bleeding and no swelling.  But by the time I took the wrap off, I was already pissed and disappointed in the whole visit.


Needless to say, I will NOT be going back to Mayo Clinic, at least not for Hematology issues.  My cancer doc, Dr. Wehbe is as good if not better than the morons at Mayo.


We stayed Monday night cuz I was emotionally wiped and mom was kinda tired too.  Fell asleep in my jeans on top of the covers and took a 2 hour nap.  So by the time I woke, there was no leaving on Monday.  We got up at 9 today, was out the door before 10 and home before 2.  More driving thru BFE Minnesota and BFE Iowa.  But we made it.  May I NEVER have to make that trip again.


I would like to thank mother nature for keeping the weather beautiful for December in Minnesota, and the drive up and back.

Author: Jeff Campbell

I am a 47 year old dude, married to the most wonderful woman in the world. I am a yearish survivor of AML Leukemia. I now have it again, but that is because signs were missed back in 2015. I'm crazy but that's how it goes. Overall I love my life.

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