More questions than answers

As the day draws closers, we don’t know if they are going to make me stay in the hospital on that day or another day.  Going to call the doctor at Mayo tomorrow and ask.  If they are going to put me in the hospital on the 31st it would be good to know.  We figured that they would have told me before this if it was to be, but since I only talked to a doctor and a secretary, they might have thought the other told me so.  So, a phone call is in order.

I don’t want to go in on January 31st or the very beginning of February without some notice.  I doubt anyone would want to go in without knowing ahead of time.  I could be wrong though, it could be assumed since I am meeting with the transplant team and my doctor that maybe just maybe they are going to put me in the hospital really quick.


I still don’t really know how I feel about this who stem cell transplant situation.  It’s just an event that is going to happen in my life.  Just another thing to add to my long list of medical things that have happened to me in my not so long life.

I am not looking forward to chemo again, I know that.  I’m a little weirded out by the thought of radiation.  (Good thing I already was unable to have children, eh?)  I do believe both of these things are used to totally wipe out my bone marrow.  Oh, in case I haven’t mentioned it.  Bone Marrow Transplant = Stem Cell Transplant, same thing.


Teresa got the 30th and 31st off to be with me at Mayo.  I asked her to get those days off so she can ask her questions and hear all the answers first hand.  I don’t want her to not know something that I forgot to tell her.  Been there, done that, and it always turns out with me feeling like an idiot.


An old friend of mine reappeared on Facebook.  He doesn’t know about the MDS, the genetic issue, the transplant coming up, anything.  Heck he doesn’t even know about my platelets going screwy in the first place.   He’s in for a shock (if he chooses not to read this) when my wife ends up posting for me cuz I am too sick from the chemo to post.  My long time Facebook friends probably remember those days from AML chemo.


I already miss my D&D games.  They were helping me keep sane and be social.  But I had to cut them loose cuz I won’t be able to game while in the hospital.  And there was no since in continuing them up until the day I go in, that’d just make me feel worse about stopping the game I was running.  And make me feel worse about bailing on the Friday night game when they got closer to the goal.  Yeah, it was better to cancel now I think.


Oh, I do hope to keep my WordPress readers informed of what is happening as best as I can while in chemo.  But I am sure there will be a point where I will be unable to and my wife will not know how to write this blog.  Even though it’s painfully easy, click the Blog button on the favorites bar and then click write, then write, the click Publish.  Not rocket science, but I think it’d be too much to ask her to write here and Facebook.


Teresa forgot to feed the dogs earlier tonight til just now (supposed to be 7:30, it’s 10pm now).  Pucky got it and got to eating.  Mojo didn’t understand and just wanted the new treats that my wife made for them.  It took 3 runs around the bed and then basically slapping the bowl down in front of him with the command to eat.  It was funny.


I haven’t been sleeping well lately.  Nightmares which I attribute to stress that I don’t acknowledge.  I mean, I don’t feel stressed about anything, but I am sure it’s there and manifesting itself into Nightmares.  Not a pleasant way to wake up every could hours.


Been playing a lot of Skyrim lately.  Highest level so far is 40 then I get bored with the character.  I really hate most of the Dawnguard expansion, and most of the Dragonborn expansion.  LOL.  They could have cut a lot out of both of those and merged them together and made 1 really killer downloadable expansion.  But I think there are others who really like them the way they are, so I won’t bag too hard on them.  Dawnguard can go without the whole Forgotten Valley bit (I forget the actual name of the Valley, but it’s like a bajillion hours of running around to collect water to get to the main bad guy, who is a chump if you have the right build.  Dragonborn is just weird, the whole weird world you walk thru with the papers could have been cut and I wouldn’t have missed it.  Just let me at the big bad guy who is also a chump if you have the right build or the right amount of healing potions.  Don’t get me wrong though,  Skyrim is a great game, even with the parts I don’t care for.  I am so glad I bought it last year as a Christmas present for myself.


Part of me is actually looking forward to the hospital stay, where I don’t have to think about anything.  All I have to worry about is going to the restroom, and keeping myself entertained (computer, TV, talking to wife, etc.).  The rest of everything is pretty much taken care of by nurses and aides.  Yup, hospitals are a lazy person’s dream place if you didn’t have to be really sick to be in it.


I’m upset that I am going to miss my brother’s 50th Birthday party.  I know I am going to be in no shape to travel then.  My September plans might be out too.  I am hoping to still make it Thanksgivingfest and Thanksgiving in November.  I’ll have to ask about recovery time after the transplant, realistically will I be able to travel this year?


That’s it for tonight,  oh yeah, Cori gets mad if I don’t include music that she can comment on… so hang on….


Author: Jeff Campbell

I am 48 year old guy, who is dying now. Still married to the most wonderful woman in the world. She is standing by me thru this cancer bs. I have about a year or so to live. So I am trying to make every day worth it.

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