One night or One week… ugh

Bah! I won’t find out how long this visit is until I get there.  I finally got ahold of Dr. Shin and he said it’s up to the transplant team.  If they deem me a good candidate for transplant (which I thought I already was or I wouldn’t be running back up to Mayo) there will be several days of testing.  Well, that just kinda sucks, not knowing.  Dr. Shin recommended packing for a week and that is exactly what I am going to do.  I just don’t think it’s right that my Doctor is out of the loop as to if I am going to get a transplant.  It was his (well his pathologist’s) discovery that I have that stupid genetic marker, he should be included in the whole thing I would think.  But hey, who am I?  Just the patient.


I haven’t used my cpap in many months.  Yeah, bad me.  Around Christmas time I ordered a SoClean 2 to keep my cpap clean.  I had issues cleaning it good enough to not cause me to develop a chronic cough.  So, the SoClean is supposed to fix that.  So, I finally am getting around to giving all the pieces of the cpap machine a good cleaning and hooking up the SoClean.  It will be good to start sleeping well thru the night again.


Once again Teresa’s work is being incredible about my health/hospital issues.  They are gonna let Teresa work from hotel and hospital rooms.  This is very much against company policy in general.  Company policy is that an employee must work from the office to get paid.  I know this is extenuating circumstances, but they could be total jerks about it, instead they are like do what you need to and take care of Jeff.  That’s just cool of them if you ask me.


Tomorrow I have to call the Vet/Boarding Place for the dogs and turn my 1 night confirmed into possibly a week.  22 dollars a day per dog.  So 44 dollars a night for my doggies to be boarded, that doesn’t sound too bad.  I hope they have space for them for the potential week.  They just added a huge addition for boarding animals, so I assume it’ll be no problem.


I don’t think (I hope it isn’t) it will be a problem with the hotel.  It’s not the cheapest or the best, but it is pretty big.  So I figure they will have some place to put us if we have to stay longer.


I was thinking of not taking my laptop on this visit.  Cuz it was only 1 night, and I can be laptopless for 1 night.  Now with the potential of it being longer, I am definitely taking it with.


I tried playing Civ6 today.  Everything I dislike about the Civ series is present and then add a few more things I don’t like, then you have Civ6.  I read great reviews about it.  I thought I’d like it, but no, I think it requires more thought than I am willing to give at this time.  Maybe if I didn’t have all this crap hanging over me I would like it.  But right now, I don’t, oh well.


I know I bashed on parts of Skyrim yesterday.  Well, it’s still my go to game when I think I want to play a game.  I’m starting over again and again though, never getting much past level 20something, then new character.  Like I said my highest level character (which got deleted by accident) was 42.  Current high level is 32, and Orc Warrior who is learning to cast Destruction Magicka.  If I was his follower, I would be pissed that big bad Warrior is now casting baby fire spells when they wade into battle.  LOL.  Anyhow, the Orc is on hiatus and I am back to trying to find a Thief/Archer build that I like.  So far, I have let the thief part slide while making pure archers, so not what I am looking for.  I’ll figure out the proper mix of skills yet.


Civ4 Warlords still holds a special place in my gaming heart.  I will always ALWAYS play that when I want to just kill time and not think to hard.  But after all these thousands of hours playing it, I have never won a conquest victory without the use of nukes.  I find that unacceptable.  I know it can be done, I have come close a few times, then had some mishap happen that pissed me off and I quit (underdefending my home cities is biggest thing I am guilty of).  Maybe I will play it again tonight and try again to win without nukes.  I am kinda feeling the need to take a break from Skyrim.


Praying people and people who send good thoughts, please keep me in mind when you are doing so.  I can use all the help I can get to get thru all that the near future is giving me.  I’m not scared as I go into this, but I am hoping for a better year than 2015 was as far as in the hospital getting chemo goes.  So, thanks in advance for the prayers and good thoughts.


Author: Jeff Campbell

I'm a 45+ year old AML survivor, now with MDS. About to go to Mayo for a Stem Cell Transplant. I also have bipolar disorder. Cancer and bipolar make for an interesting life sometimes. I have a wonderful wife of 25+ years who has been with me thru it all. Even with my problems, I pretty much love my life.

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