Written during a slight sugar high.

Tomorrow starts round 2 at Mayo Clinic.  Blood test at 4 and a different blood test at 4:40.  Weird that they couldn’t do them at the same time, but hey, I’m just a patient, so who I am to think it’s weird?  Then we have an early morning on Wednesday.  And 3 appointments on Wednesday, the transplant team, the social worker, and then Dr. Shin (the doctor I didn’t like at first, but do like now).  The transplant team is the ones who decide if I am to stay there for longer then 1 night.  I really only feel like being there 1 night, but it’s all good.  If they want me there longer, I will stay longer.  It’s all for the goal of having working bone marrow again.


Went and had a blood test today and they determined my platelets are 39.  I think there was a mistake made.  I have fairly wicked petechial bruising.   Petechial Bruising happens normally when your platelets are below 20.  It’s not the first time that I have had a strange platelet number and then the next one is vastly different and much lower.  I guess we will know tomorrow or probably Wednesday rather.  I don’t really want to have to get an infusion while at Mayo, but if I have to I have to.


I will start packing here in a couple hours.  Right now I am debating between playing Skyrim or taking a nap.  I am thinking Skyrim right now cuz I just ate 3 donuts and am feeling a slight sugar high, so I doubt I could nap right away.  Packing for a week, that means breaking out the big suitcase.


Tomorrow morning the dogs go to the Vet/Boarding place.  They both need some vet stuff, so we just said do it to them while they are there being boarded.  Then we don’t have to worry about it when we get back.  Mojo is gonna howl while neither of us are around to comfort him.  This is gonna be traumatizing for him I think.  Pucky is so easy going, the vet techs all love him.  He will be fine, but poor Mojo, he doesn’t like not being with Teresa or myself.


We are set to leave at 11am to get up there around 3.  Giving us a lunch break during the drive.  Like I said, I have labs at 4, so getting there at 3 will give us a chance to get checked into the hotel and walk to the blood draw place.  If you have never been to Rochester, there is a sprawling underground walkway connecting hotels, restaurants, medical places, and shopping.  It’s all well lit, patrolled, and climate controlled.  It’s nice.  So we check in around 3, get settles a bit,  and then hot foot it over to the Hilton building and check in to get blood drawn… twice.


Was worried that the hospital was far away.  We checked that map and it’s actually closer than Mayo Clinic is.   So, since Mayo Clinic was only a 10 minute walk, I am guessing the hospital is less than 5.  But I will be there early for every appointment, it’s just how I like to be.


Like I said earlier, the transplant team is going to decide if I stay a week or just a night.  Teresa is all set to stay a night, but she is unsure about staying longer.  I may be alone up there for a few days.  No big deal.  If I end up being alone I will move into a cheaper room and go about my days as dictated by the transplant team.   Then Teresa would come and pick me up when they are done with me (for now).


My mom wants to be there “the whole time” I am hospitalized getting chemo.  I am not sure I want her there all that time.  I love my mom dearly.  Just when I am getting chemo and dealing with all that entails, I would rather it be just Teresa.  Besides, Teresa plans to stay with me (sleeping in a chair or such).  Mom would have to get a hotel room and rooms in Rochester go from kinda expensive to OMG expensive.  Rochester adds a 17% tax on hotel rooms too.  So, I am not sure my mom can afford to bet there “the whole time:”  But I am not gonna tell her NO if she wants to come.


OK, enough talking about Mayo.


My brother has some plan to make a lot of money he says.  I don’t know what he is doing.  But he built a computer he calls the Beast.   It’s supposed to be a mining rig for cryptocurrency of some kind.  I haven’t followed too close as I have health issues to occupy my time and mind.  But I really hope it works for him as he thinks it will.  Someone in our family need a big break.


A bit about Skyrim.  I mentioned a few weeks back that I had a character I was gonna play to level 50.  Well, that character didn’t last.  I have new hope for the one I am playing now.  A redguard, warrior/mage.  She is a real monster now.  Has a max enchanted scimitar with CHAOS enchant.  This give a 50% change on every hit to do an extra 50 points of Fire, Frost, and/or Shock damage.  So she basically hits for base 35 points and can count of at least 50 but up to 150 bonus points of damage.   She is one shoting most things, occasionally has to hit twice the tougher guys.  I am having fun with her.

By the way, if you are playing Skyrim and want to get the CHAOS enchantment.  It’s on Solsteim, go to the farm due south of Raven Rock, save the Captain from the 3  Ash Spawns.  Loot the spawns and you get a  declaration of war for a 200 year old Imperial officer at a nearby fort.  Show the note to the captain and agree to go to the fort.  At the fort, fight a lot of Ashe Spawns.  Eventually find your way to fight the big bad guy and a bunch of ash spawns.  The Big Bad Officer guy drops a Champions Cudgel.  The Cudgel has the CHAOS enchant on it.   Take it back to a enchanting place, and proceed to disenchant the cudgel and then cast it on your weapon of choice.   WARNING.  The battle with the BIG BADDY is really tough.  But this enchant is VERY worth it.


MUSIC


Author: Jeff Campbell

I'm a 45+ year old AML survivor, now with MDS. About to go to Mayo for a Stem Cell Transplant. I also have bipolar disorder. Cancer and bipolar make for an interesting life sometimes. I have a wonderful wife of 25+ years who has been with me thru it all. Even with my problems, I pretty much love my life.

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