The promised rewrite, not quite what I promised though

LOL, an curling athlete from Russia got busted for doping.  I really don’t know if that is just a bad on him, or its a bad thing on Russia as a country in the Olympics.  Let me explain, if I was the people in charge of Russian athletes going to the Olympics after the fiasco that happened at the last Olympics, I would make damn sure none of our athletes were using anything harsher than Tylenol (and not the stuff with codeine). So this moron curler using a drug that has been banned for a few years and gets caught.  Shines a bad light on him and on Russia I think.  But the worse part was it was CURLING.

Fatigue has practically taken over my life, the fact that today I was up at 3:30pm was a first in about a week.  And when I am awake, I am so tired, it’s ridiculous.  Doc warned me that I would experience “some fatigue” as things progressed.  If this is “some fatigue”, I would hate to see “a lot of fatigue”.  Friday night I went to bed at 11pm and Saturday I woke up at 5pm, that seems to be about normal for me right now.  I don’t think that the fatigue means I am getting sicker, just thinking things are changing internally.  It’s ok that I am sleeping all day for the most part.  I will fight it like mad when we finally go up to Mayo for testing, but here in Adel, I don’t make appointments before 4pm so I don’t have to drag my butt anywhere, I can be awake if I need to.  Fatigue in general sucks though, you sleep your life away.

Been so tired during the few hours I have been conscious every day that I haven’t played much Skyrim.  I had started yet another new character with intentions on actually playing him up to level 50 and beyond.  Level 50 is kinda the top, most of the followers stop leveling at level 50 and you should in theory have most of the big quests done I would think.  There is also a Gold Achievement for reaching level 50.  My highest has still be 42, no clue why I deleted him other than I got bored with him or Skyrim at the wrong time for him.  So this new guy I created I do have hopes for.  He is level 12 as of now.

Teresa wants to play Skyrim when I get too sick to play.  It’s all good, she can use my laptop to play if I am not playing.  It’s definitely a game she would like to play, it’s very much her style.  As I was playing next to her while she played Witcher III on the PlayStation, she kept comparing the games.  So between now and then I will show her how to cheat.  She asked me to do that, so I will happily do so.  I still think even with cheating she will die in the first dungeon a couple times, that first spider is tough and the other regular boss is tough, and the last dude is super tough until you figure out exactly how to play.

2018 is sucking so far.  My health has been crap since the New Year and its going to culminate in this transplant and then 100 days up in Rochester to see if I end up with serious Graph vs Host Disease.  And one more time for those that don’t know what GvHD is.  It’s where the new stem cells attack the host body.  Worst case, full rejection, I die.  No life support, no 2nd chance, full rejection, I die.  Very rare that it happens, but it does.  There are chronic cases and acute cases.  Chronic cases can be life long issues, the one I fear most is problems with your lungs.  Acute cases last as few weeks and then go away, not worried about those.  But whatever happens, if I survive, I can live with it.

Still have no clue how we are going to pay for everything.  GoFundMe has gotten us some money, but it’s not nearly close to what the social work said would have to come out of our pockets.  Want to put the GoFundMe blurb on the “You know your from Adel…” page on Facebook, just don’t know what to say.  I feel like a total jerk asking for money from friends, neighbors, and strangers, but we gotta do something.

So my Facebook promised rewrite wasn’t all fluff and good feelings.  It’s gonna end on a good note though.  Everyone should know I was a huge David Bowie fan…  Well, I found a cover of Heroes that I really like.  So here ya go

Author: Jeff Campbell

I am a 47 year old dude, married to the most wonderful woman in the world. I am officially a 2 year survivor of AML Leukemia, I now have an unknown type of blood cancer. I am crazy but love my life anyway.

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