I actually got to talk to my transplant doc today. Miracle of miracles. I found out an interesting tidbit, the mutation that I have now which requires the transplant has existed since the very first bone marrow biopsy back in April 2015. Which basically means I should have had the transplant back then. Not pointing fingers, not laying blame, not accusing anyone of anything, but this mutation was missed back then and now technically I am in worse shape for it. Bah, I feel ok, not great, dealing more with stress issues than anything else. Definitely not upset about this, mistakes happen, I didn’t die then, so it’s all good I guess.
Finally got someone at Mayo to listen to me about us paying for the Donor Search. Doc was very very upset about the fact that my insurance won’t pay for it and is going to fire off a very stern email with his opinion on the matter. I would go so far as to say he was down right pissed about it. But anyway, the Donor Search takes 6 to 8 weeks (maybe less cuz I am already HLA cross matched). So instead of being 3-5 weeks from transplant, we are more like 10 (from now). I think I mentioned something about the original 6 to 8 weeks was a bit ambitious in my opinion. I don’t mind the wait as long as I know something is going on. Oh yeah, Mayo is gonna bill us for the Donor Search and then also help us apply for grants.
The good news about the delay is the I won’t be in the hospital for Teresa’s Birthday and our 25th Anniversary. The bad news is I already cancelled the surprise I was gonna give her and now we can’t afford it anyway. Now I have some time to come up with some gifts that aren’t very expensive that are appropriate for her birthday and our anniversary. I’ll think of something.
The relief I feel getting an update on what is going on FINALLY is amazing. I had so much stress built up and now I am just mellow again. All I want is to know what is going on. I’m not asking for much.
The Elimination Chamber PPV last night was good. I really enjoyed all of it. The women’s elimination match was the best match of the night. The men’s match results had been leaked a week or so ago so it wasn’t a surprise and I have a question for the WWE… Do we really have to see Roman Reigns vs Brock Lesnar AGAIN? And yes, I know Reigns is actually supposed to beat Lesnar at WrestleMania, but it’s still gonna be the same garbage match with a different outcome.
Just got a call from Dr. Shin at Mayo Clinic, I guess when it rains it pours. I knew I was gonna have to go up there again for blood work. Next Friday is the day. 8 or 9 am blood draw 1 pm appointment with him. We are a little confused as to why we are seeing him and why the local place can’t check my blood. But hey, he wants to see me, so off we go.
Well, from talking with Dr. Alkhateen and Dr. Shin, I have come to the conclusion that they think my leukemia is coming back. I don’t think that is the case, but hey, I am not a doctor and I don’t play one on TV.
We should be staying 1 night in the transplant house on Thursday, March 8th to Friday, March 9th. It’ll cost 70 dollars, but will get our foot in the door so to speak. So it’s all good I guess.
Sorry for all the Mayo talk. I did get a WWE PPV in there though. Some music.