I wish it was September already

Some day in the relatively (and I mean soonish on the greater scale of things) we are heading to the Region to pass our dogs to my mother-in-law who is taking them to New York with her while we are in Rochester.  We don’t have dates as to when this will happen, figuring 6 to 8 weeks, but if I have leukemia first, it’ll be a lot sooner I would think.  I’m gonna miss Pucky and Mojo, they were really there for me between chemo/infection visits last time.  But I am sure they will have a good time in New York with my nieces, who have expressed exuberance at the thought of playing with Pucky and Mojo.


Sitting here pondering how horrible the whole transplant and recovery is going to be.  LOL.  I supposed this is what other people do to while they wait for a donor and the transplant, think about how rotten it’s going to be until it’s not rotten.  Yeah, I know that ultimately (Assuming no chronic GVHD) I should be better than I am (not dying is better, but I mean healthier in the greater sense).  But until that point where I feel better, I am gonna feel terrible.

Dr Alkhateeb said that the chemo I get for the transplant is gonna be worse than the chemo I had during leukemia induction.  Since induction was so terrible that I don’t remember 98% of it, I think it’s gonna be hard to be worse.  But I figure, it’s gonna be bad, real bad.  I am so not looking forward to that.

He also said that I get dumped out of the hospital the day of or the day after the transplant procedure and that disturbs me on some base levels.  OK, I won’t be dumped, but will be sent to the transplant house.  This is assuming I don’t get horribly sick or anything before or during the transplant.  It’ll be weird being so delicate and not being in a hospital.   But this is how they do it, and they are #1 in the nation for these kinds of transplants, so they know what they are doing.


I just want the next 9ish weeks to fly by instead of crawling like they have been doing.  It feels like 2 weeks for every week at least.  Horrible feeling.


Teresa sent a message to Dr. Shin, the hematologist on My Team, informing him that my platelets were only 18 on Thursday. (I think they are lower today).  And basically asking him if this appointment is absolutely necessary, in a totally polite way.  It is 3 1/2 hours each way plus the cost to stay 1 night, and food too.  Plus Teresa has to blow 2 days of vacation.  So if its NOT important and absolutely necessary, we would rather not go.  However, I have the strange feeling that he’s gonna say it’s of upmost importance and we will be off to see him this Friday (leaving Thursday).


This might be tmi and a little gross…  but the reason I think my platelets are lower is that when I blew my nose this morning, it was as much blood as it was snot.  Very gross looking and kinda disturbing.  But petechial bruising is at a bare minimum and I am not bruising or bleeding anywhere else, so we are holding out hope of making it to Mayo.


Teresa was surprised today when I told her that cable goes out just about every morning for a few minutes.  I had mentioned it to her before I think, and she blew it off cuz it’s only like 2 or 3 minutes usually.  But I guess our neighbor was trying to use the net yesterday during this brief interruption and he let her know and I verified it.  It’s of minor inconvenience most of the time, so why would I have pushed it as an issue?


I did all the chances to win 1 million dollars or more on PCHLotto tonight.  Again, I know I won’t win, but wouldn’t it be cool if I did.  Not to have to worry about how we are gonna pay for all my medical bills and still have money left to do things like go on a cruise.  Anyhow, I got 30 or 40 entrants total in the 2 contests worth at least 1 million tonight.  And probably about 100 in the big one that goes all week that goes off tomorrow i think.  It’s just be so cool to win something for Publisher Clearing House.  At this point I’d be happy with $1.00.


Teresa’s anniversary gift arrived today.  I really hope she likes it.  As it’s our 25th anniversary, which is the silver anniversary, I got her a silver Celtic knot and a silver chain.  Since Celtic knots stand for 3 things and can be just about any 3 things (per several Celtic books I have read), I am gonna call the 3 points, Good Luck, Love, and Family.  We need 1, we have 1, and we are 1.  I think it’s cool.  The problem is I am horrible at keeping gifts secret, so I will probably give it to her way before April 2nd.


Anyhow, I think I have blathered on enough for tonight.  Let me go find some music and I will be on my way and you can resume your lives hopefully none the worse for wear.


Author: Jeff Campbell

I'm a 45+ year old AML survivor, now with MDS. About to go to Mayo for a Stem Cell Transplant. I also have bipolar disorder. Cancer and bipolar make for an interesting life sometimes. I have a wonderful wife of 25+ years who has been with me thru it all. Even with my problems, I pretty much love my life.

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