too long in a car, but really good news

Been up since 5:30am.  No nap today.  It’s now around 10pm.  I should be wiped out totally, but I am still awake but dragging quite a bit.  It was a long, eventful day.  We started with a 3 1/2+ hour drive up to Rochester, MN, more specifically Mayo Clinic.  Had a blood test, they only took 1 vial, really weird.  Then sat around for a couple hours while I watched the blood test results via the Mayo Clinic app.  We then met with Dr. Shin who told us all sorts of good news which I will get into in a bit.  After that we went to a New York style Pizzeria.  Then we headed home, another 3 1/2+ hour drive.  Kinda a brutal day, but worth the drive up there.

Dr Shin told us that I have AML Leukemia again.  But we caught it in an infant state.  He actually said that it was “Fantastic”.  Had to correct him and point out that telling someone they have cancer is never Fantastic.  He went on to tell us that I won’t be needing extra rounds of chemo before the transplant as long as I don’t need a lot of platelet infusions between now and then.  By the way, my platelets were 31 (go figure).  Seems my platelets count is yo-yoing never quite getting low enough for infusions, so this is a good thing.  So, according to him, my platelets are stable.  Whatever, less chemo is what the main point was.   And the biggest and best thing that he said was that Dr Alkhateeb told him that they had already found 2 possible donor matches in the first week.  That is way cool.  I really hope that 1 of them becomes a real donor.  If that happens quick enough, I might actually get to see some summer this year.

And if I get to see some summer, I might, just might be healthy enough to go to Thanksgivingfest this November, and lunch with Andi and Shawn the day after.  These are my personal goals.  Thanksgivingfest, lunch and then Thanksgiving with my family.

Oh yeah, we were supposed to leave for Rochester yesterday and not have the long day we did today.  We didn’t leave yesterday cuz Teresa is sick still, she has been sick for a little over a week.  She was still sick this morning, but we had to go today.  And it was a really good thing that we did.

Tonight I have a wicked cough.  I have had a chronic cough on and off since first chemo.   Tonight’s cough is not the same chronic cough.  It’s a wet nasty cough.   I hope 1.  It doesn’t last and 2.  That if I was sick earlier and didn’t know it I didn’t pass it along to anyone at Mayo.

Teresa is now watching Valerian blah blah blah.  She was right, I don’t like it.  The main character has zero charisma.  And his love interest that is supposed to be a knockout isn’t that pretty.  It’s just not a very good movie and i don’t think it’s either of their faults.

Gonna guzzle some cough medicine and then probably go to bed.  But first some music.


Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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