We made it to Rochester yesterday, it snowed the whole way… in APRIL. The drive itself was uneventful other than we got an hour later start than we had attended. I think that was mostly my fault, but hey, a guy needs to shave every now and then. With the snow it took us about 3 hours and 45 minutes, about 15 minutes longer then normal.
The drive back is supposed to be in 50s and 60s when we get home. Go figure. I would say Spring is finally coming but it’s supposed to snow again here in Rochester over the weekend.
It’s cold here. Not brutally cold, but cold enough to be annoying. There is still a considerable amount of snow on the ground and a few slick spots. But all that should melt by Thursday.
Today was my first day of “testing”, standard bio testing to check to make sure all the internals work. 21 vials of blood to see if a man can survive being drained of all of his blood. Seriously, 21 vials is a lot of blood. Student nurse took my blood, she had problems getting the blood into some of the vials and when she was done, she did something wrong and blood went everywhere. Plus my platelets are very low (not infusion low, but very low) so I bled while she freaked out. At least the full nurse had a clue what to do. Also had a visit with a dentist who gave the ok to proceed.
The most interesting part of the day was finding out how much this transplant is supposed to cost… $369,200. Yup, that’s A LOT of money. Luckily we only have to pay a small (relative) portion of that. Thank the gods that Teresa has good insurance. And for reference for those who knew me back in 2015, the leukemia treatment was only $112,000.
Oh yeah, my doctor for some reason unknowns to us, cancelled the SPINAL TAP. So no hole in my back today. But I still have the bone marrow biopsy #9 tomorrow morning bright an early.
We got back to the Gift-of-life house at 1:42pm and I was totally wiped out tired. For someone use to sleeping 12 hours and then napping for 2 during the day it was rough to do today on less than 6 hours of sleep. I called my mom. I updated Facebook. Then I tried to take a nap. I think I succeeded to get about 15 minutes of sleep. The strange place and the unusual bed just wouldn’t let me nap. So I am really dragging hard at 7:44pm while writing this.
Heh, so tired I almost forgot to tell you all… They got my a Donor. He is a 19 year old guy from Germany. Yup, they fly to Germany then fly back to the US to give me the donation same day. Pretty impressive. And this is the best news we have received since getting told I had AML again.
Potentially Thursday I will know when I am going into the hospital for the transplant. We are hoping for a couple more weeks to get ready for this. This is a big thing. The biggest issue right now is that we have to get our dogs to my family. There are other things we need to get ready too, but that is the big one.
But to be honest, I am anxious and anticipatory for this transplant. Partially nervous out of my mind, partially can’t wait for it to get started.
No matter how this comes down, I will be in the Gift-of-Life House past my birthday. When this started that wasn’t supposed to be. BLAH.
I still won’t be in any shape to go to Thanksgivingfest or Thanksgiving with my family come November. I will just bet too fatigued.
Since there is no TV allowed in the rooms of Gift-of-Life we are (well I am) listening to the Music Choice app’s 80s channel on my Ipad thru out Alexa (yes, we brought it along).
Here is a sample of what is playing on said channel