My plans have plans

Hmm, I sprained, strained, or tore something inside my right thumb.  Started hurting on Friday.  I think I am going to go to the doctor (well, Chris, the PA) tomorrow.  I wonder if the Adel Mercy office has an X-Ray machine?  Would be easiest for me if they did, then I wouldn’t have to go somewhere else.  For some reason I am thinking they do not, I am thinking I remember him saying so before.  Oh well, I will go see him, let him squish the far in joint, watch me squirm and yelp and then go about my business, which might include going to Mercy West Lakes and getting an x-ray of my hand.  Not a fun way to spend a Monday, especially not with other issues pending so close.


I am typing this mostly left handed, so I am not tempted to space bar with my right thumb.  It’s actually quite difficult.


Because I can’t type comfortably, my book that I am writing has been put on temporary hold.  I am approximately 8500 words in and feel pretty good about that even though I started writing 2 weeks ago.  I didn’t write anything while at Mayo, had my mind on other things.  I tried to write some (about 200 words) on Friday evening and it hurt my thumb a lot.  So, I have called a book writing hiatus.


If we do nothing for the speeding up of my transplant, it’ll happen in about 5 weeks or so.  15 work days is what insurance wants to approve the transplant.  I hope to be able to call the insurance company and possibly speed things up a bit.  I have the eerie feeling that my platelets are gonna tank 1 more time before the transplant, which would mean another platelet infusion which would cost them money.  So, you can see it’s in their best interest to approve me for the transplant early.  According to my transplant doc, it’s a slam dunk case, I get the transplant or I die.  Simply cut and dry.


Teresa discovered a way to play with her PlayStation on her Mac.  This is a good thing because there really isn’t a whole lot to do up in Rochester if you are the Primary Care Giver and not actively giving care.  Teresa plans to work, thus we are dragging her Mac up (used to be my Mac, long story) to Rochester.  If she happens to play the new God of War game in her spare spare time, it’s nobodies business but hers and I guess technically mine.


I am taking my D&D books with me.  I am gonna work on a large campaign for when I can get back to playing online with my friends.  This will probably end up being the largest campaign that I have plotted out, but when all you have is time, it’s, I won’t say easy, it’s less stressful than when you are budgeting time that you probably should be doing something else with.  And Mordenkainen’s Tome of Foes is supposed to come out May 29th, so I have a new book of monsters to throw at the group.  Yeah, this campaign should turn out EPIC.


We still haven’t taken the dogs to my mom and brother yet.  We are holding out to the last possible minute.  It’s going to be rough to leave them behind, but this is what is the best for them.  The other options we had were too expensive and Pucky and Mojo wouldn’t get the amount of human contact they want/need.   So, when the transplant is scheduled, we will make the pilgrimage to the Region and drop off our furbabies.


I have lunch scheduled on Tuesday with my friend Drew.  Gonna suggest Gusto Pizza or HuHot Mongolian Grill to him and let him make the choice.  I am fine with either of these two places.  Gusto cuz well, it’s the best pizza we have found in the Des Moines area or HuHot cuz I am soon not going to be able to have fresh fruits and vegetables for quite a while.  So either choice is cool with me.


Yeah, for you who may be interested in sending something to me while I am in recovery.  Don’t send a fruit basket and any flowers.  Beyond the reason that both can kill me, they are also not allowed at the Gift of Life transplant house and will be rejected.  I will post the address for cards and stuff like that when we have a permanent housing spot for the 100 days.


Speaking of the 100 days.  Teresa overheard some of the Primary Care Givers talking about the 100 days.  Or the 160, 240, and year that these women had been in the transplant house.   I will go fricking NUTS if I have to stay much longer than the 100 days I was told.  I can understand if I am sick they aren’t letting me go, but if I am healthy, the damn well better let me go when they said they would.


As it stands, I won’t be cleared to travel anywhere for at least a year after my transplant.  So May 2019 is what it looks like.  That is ok, we wont be able to afford to travel before then anyway.


It snow again last night.  Started on APRIL 14 and snowed right into APRIL 15.  Someone needs to wake up mother nature and let her know that he world is supposed to be experiencing Global Warming.  Snow in mid-April is ridiculous.


Tomorrow I need to call Julie, my shrink’s secretary and relay the info that Mayo send to me for my shrink.  They asked for a letter with diagnoses and treatment stuff.  Still don’t know the name of my cancer shrink and I guess they aren’t giving it to me for my shrink either.  Oh well, we have a fax number and a general idea of who to send it to for sharing with Dr. Alkhateeb and the Cancer Shrink.


Heh, when I started typing this entry, I didn’t think it was gonna be over 1000 words.  I guess I had a lot more on my mind than I have had recently.  I guess I’ll cut this off here, I think I have ran out of ramble for now.


I may have played this song before on my blog.  But hey, “Don’t Stop Me Now”

Author: Jeff Campbell

I am a 47 year old dude, married to the most wonderful woman in the world. I am a yearish survivor of AML Leukemia. I now have it again, but that is because signs were missed back in 2015. I'm crazy but that's how it goes. Overall I love my life.

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