More CPAP Blues, thank you Dr. Google

I went and saw Dr Donahue today (Chris, the PA, had today and tomorrow off) about my thumb.  She was very sympathetic about it.  Relayed a personal story of one of her fingers which had similar pain.  Explained that normally they prescribe NSAIDs and then send you on your way.  Well, because my platelets are so low, I can’t do NSAIDs at all.  So she tried to prescribe Prednisone (you know, the steroid that solves everything).  Since my transplant is in like 5 weeks, it just didn’t seem right putting Prednisone in my system right now, so I chose not to have it filled.  She said without treatment my thumb will probably hurt for a week to a week and a half if I take it easy on it, which I am trying to do.


OK, I went back on the CPAP per Dr Alkhateeb’s instruction and I am super compliant, getting 100 out of 100 on the app.  That’s right, I am doing CPAP perfectly according to ResMed.  However, during the day I am still fatigued/super tired.  I napped for an hour and 2 snoozes and failed at napping a 2nd time but got 10 minutes, so it’s all good.  I did some research with Dr. Google and he recommended a dental appliance for sleep apnea in conjunction with my CPAP.  Dr. Google seems to think I might not have sleep apnea at all and that I might have Upper Airway Resistance Syndrome, which according to a lot of stuff I read presents almost exactly like sleep apnea.  The “cure” for UARS is the same dental appliance used to treat sleep apnea.  Interesting.  It’s just a mouthguard similar to what football players wear, just designed to jut your lower jaw forward a bit to open said airway and keep from waking you many times during the night. Now, some places online say that this is uncomfortable at first, but you get used to it.  There is also a chance that it might loosen a crown or two in my mouth, that would be a real concern.  However, if I am gonna use the CPAP per doctor’s orders and not nap all the time per doctor’s orders, I have to do something.  And with all the money we shelled out to Mayo, we wouldn’t have to pay a penny for the dental appliance.  The only question I have is how long does it take to get a custom made dental appliance?  For that I will call Adel Dental Group tomorrow and ask.


Hopefully my transplant paperwork got to the insurance today.  It was supposed to.  15 work days from today is when they are supposed to give their approval.  That is when the magic begins.

I have no clue when we are taking the dogs to my mom and brother, it’s just going to magically happen over a couple of days between now and when the transplant procedure begins.

I have no clue when we are gonna get done all we need to get done, especially with my bad thumb slowing everything down.  But we shall persevere, what doesn’t get done just doesn’t get done.


Drew never called me back to confirm lunch tomorrow.  I guess I will call him later.  Would hate to miss lunch with my friend because we failed to communicate.


Dr Alkhateeb put me on Centrum Multivitamin with Minerals.  Which is all good and such, just every time I take a vitamin I get a touch of heartburn.  Now true heartburn is an impossibility for me cuz of my surgery in 2004.  No acid can get anywhere near the area of my chest.  So, it’s weird to have this little pain in my chest a half hour after taking the Vitamin.  I had this pain the last time I tried Multivitamins so I stopped.  Now I kinda have to take them.  So GasX to the rescue… every night.


I took care of everything today that I had to take care of.  Which consisted of making phone calls and relaying information.  Tomorrow I get to do more of the same, and possibly a trip to the doctor again for a referral to a dentist for the aforementioned dental appliance.  But I am gonna call the dentist first and make sure we can get it, and get it fitted correctly, in 3 weeks.


Hoping everything goes smoothly over the next few weeks.  Really can’t afford anything going wrong right now.  Already have my thumb being an issue, would hate to add anything else.


Anyhow, Teresa just got home.  So I am gonna go.


Author: Jeff Campbell

I'm a 45+ year old AML survivor, now with MDS. About to go to Mayo for a Stem Cell Transplant. I also have bipolar disorder. Cancer and bipolar make for an interesting life sometimes. I have a wonderful wife of 25+ years who has been with me thru it all. Even with my problems, I pretty much love my life.

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