Another Day Another Trip to Mayo

Yup, we drove to Mayo yesterday.  We drove back today.  4+ hours in each directions.  This short trip was just to take a few tests that were leftover from the trip last week.  They took some blood to test my testosterone and to check lead in my body and do some blood test on my kidney clearance (I don’t understand the test and I don’t understand the result).  The first 2 things were normal, the 3rd thing says I am a little low on the kidney clearance.  Heh, I don’t think any of it will make a difference. —  Then I did the Renal Test that I failed last week.  I would have failed it again had we not figured out that all I needed was to drink a little water between the tests.  Apparently my bladder doesn’t like to respond to demand.  But in the end it all worked out. —  Finally we met with my new Cancer Shrink (by the way, its hard to remember to say psychiatrist when you always refer to them as shrinks).  She was a nice lady asked all the required questions of a good shrink.  And she oked all the mental meds I am currently taking, so I think we will get along just fine.

Had a few issues, but nothing that couldn’t be handled.  So all went well at Mayo.

17 days til I have to report to Mayo for the Day -9 which is 9 days before the transplant.  Am I anxious, a little, but as I told the nice shrink lady, I am ready for this transplant.  I asked for it when I first found out I was sick again.  Hell, I asked for it when I was sick the first time but they don’t do transplants on the type of AML I had.

OK, here’s the skinny on what is wrong with me.  Back is 2015, I was diagnosed with Acute Myeloid Leukemia, AML.  At the same time, unbeknownst to anyone, I had Myelodysplasia Syndrome, MDS. Well, the same chemo I had for the AML (which sent me into remission) also knocked down the MDS.  Flash forward to 2017, my platelets never recovered as a matter of fact, platelets started to fall.  At the end of 2017, I had to get a platelet infusion, just happened to fall right before I made my first trip to Mayo.  My oncologist here had told me, “This is the new normal for me”, Mayo pretty much said the same thing.  BUT, they agreed to check my Bone Marrow Biopsy on the chromosomal level, something that our local Mercy Hospital can not do.  Well, it turns out they found the MDS, and that was causing my platelet problems.  So, in 2018 they decided I needed a Stem Cell Transplant.  I had another platelet infusion during all this.  There is a point where you can have had too many platelet infusions and then your body starts rejecting them.  (that was just a FYI).  The MDS I have, if I don’t have this transplant, will eventually turn into chemo-resistant AML.  Yup, an ugly return of AML that can’t be stopped by normal chemo.  Anyhow, at this point I just have MDS and the transplant is mere weeks away.

I will have to be on a neutropenic diet again.  That means no fresh fruits or vegetables and no undercooked (cook the red/pink out, well done only) meats.  While also meaning I can’t be around fresh flowers.  I lived this diet for 7 months in 2015.  It’s all good, I’m not a huge veggie or fruit eater, and I happen to really like well done meat, and I can deal without fresh flowers.  I have no clue how long I will have neutropenia this time, but Mayo wants us back for a class and I told them we can’t make it.  We shall see if they let us out of it.

On to cheerier news.  Teresa got her birthday present finally.  The new GOD OF WAR game.  So far so good, she seems to be enjoying it.  She was a huge fan of the first 3? GOD OF WAR games, and then was seems to be just as cool, although I think the kid is annoying already and she has been playing for less than a hour.  And for the record, I didn’t miss her birthday, the game was just released last night.

Oh, yeah, we got a new washer/dryer stack.  Teresa is happy about it, other than having to spend money at a time like this.  It’s actually quite an impressive looking unit if nothing else.  Big is the right word to describe it.  We got it installed yesterday morning before we left for Rochester.  So tonight is the first time Teresa had a chance to do a load of laundry, we will see if it does a good job.

Tired, extremely tired tonight.  I got up at 5:15am for a 6:10am appointment.  So, I am gonna find some music and sign off for the night.  And cuz everyone loves a Power Ballad.

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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