Better now.

My mood is much much better today.  You could even call it a good mood.  I am not angry or depressed anymore.  This is a good thing because we got a lot of stuff to get done before next Wednesday and being depressed and angry was keeping me from getting things ready.  And a good thing I am not angry at nothing anymore cuz if I was I would have wigged out at the roofers next door this morning.  Yeah, I know they were only doing their jobs, but early morning wakeup of BANG BANG BANG really sucks.  Anyhow, here it is almost 2:30pm and they are still pounding on my neighbor’s (the other half of our townhome) roof.


Went and got a blood test today, as I do every week.  My hemoglobin is still down to 10.6, my white blood count is still 2.9 and my platelets are down a few points to 15 (from 17 last week).  Pretty much what I expected them to be.  All the numbers are down from where they are supposed to be, so thus the transplant is a necessity.


As of now, I have 8 appointments on May 7th.  Only know about them cuz I clicked on the appointment tab on Mayo’s patient app.  They haven’t called me or emailed me, just populated my appointments.  But I guess it’s alright, this means it’s more definite even though we haven’t gotten the confirmation of the transplant date yet.  I am supposed to start treatment on the 8th, so the 7th for a bunch of appointments sounds reasonable.


Again for those who care.  8th and 9th are anti-seizure meds (pills) 10th-13th chemo 14th-15th other harsher chemo 16th a day off(?) 17th the transplant.  The transplant itself is a no brainer, they just pump the platelets in through the port I will have.  Takes about an hour, then they pump in 6 hours of fluids.  The whole day is like a 12 hour day.


With the exception of when I am getting chemo, I am staying at the Gift of Life Transplant House.  That is where all cards and such are to be sent.  I will post the address with our room number when we get there on the 6th.  The room number should be the same for all 110+ days we are stuck in Rochester.


Oh yeah, the reality of the 100 days, it may be up to ridiculously longer than that.  There is a better than average chance that we will be stuck there into or thru winter as well.  Especially if I have to have multiple rounds of chemo after my transplant.


Tomorrow is the Great Royal Rumble of All Time.  Starts at 11am Central Time.  Should be a cool show, I wonder how many hours they are gonna run?  But, not because we are totally sick of them, they are putting Brock Lesnar vs Roman Reigns yet again as the main event.  Doesn’t WWE know that we don’t want to see the same thing over and over?


WILL THIS POUNDING FROM NEXT DOOR EVER STOP?


The only problem with our neighbor getting his roof replaced is that our roof is going to look worse.  Hopefully our insurance company doesn’t do a drive by and say our side needs to be replaced.  Just can’t afford that right now.


It’s gonna be nice to see my mom and brother next week, even though it’s not due to the best of reasons.  I miss them, I want to see them before my transplant, and we need to drop Pucky and Mojo off.   Thankful to Teresa that she is willing to spend a few days there.  And good timing cuz we are going to be there on my brother’s days off.  So, it’s all good.


Off to do some work towards getting things ready.  Readers, you all have a good day.


Yeah, a very subjective list.  Feel free to bash the list as I have in my head.  PEACE.

Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s