One Week to Go.

Firstly, it’s good to be alive.   Teresa is here with me, while I am getting chemo every 6 hours here at Mayo on Officially Day -7.  Teresa says I won’t lose my hair until after I get out of the hospital.  I kinda hope it happens sooner, but it’s all good either way.  Day (negative) -7 is one week from Transplant day.  It’s hard to believe it’s only 7 days until THE DAY.

Chemo started at 6am this morning and will happen every 6 hours for the next 5 days.  So I am do for my next round in about 4 minutes.  This first chemo isn’t very harsh.  It’s supposed to make me nauseous, but it seems the Zofran they gave me is keeping that from happening.  I’m hungry for lunch, so, so far so good.

The big bad chemo started on day -3.  It’s a much more brutal chemo, and will most definitely do things to my nausea level, even with the Zofran.   Plus, tmi incoming, it’ll probably give me diarrhea as everything seems to do that and its a know possible side effect of that chemo.  So, something to look forward to in the days ahead.

For some reason, every time they check my O2 level, the number initially responds low…  I am not out of breath, I do not have any oxygen issues, it just starts low and then works its way up as we talk about it…. weird.

We bought the Large Vogmask, which is the N95 respirator that I need to survive this…  It’s too small.   I can’t open my mouth without it coming off over my nose.   Very frustrating, more frustrating is that Large is the largest that Vogmask makes, and quite possibly the only one that comes close.  We have searched the net and haven’t found a viable solution to this problem.

OK, I drink water during the day, quite a bit of water actually.   The nurses are trying to keep track of my intake and output.  It’s a fun game.  TMI again, I drink a lot, I pee a lot.  So the numbers are bigger then normal, so what, it’s all good.

Teresa is off to go get me a chicken in Pokemon Go.  I can’t go to the different raid spots cuz well, I am in the hospital.  So, Teresa is taking my phone along.  It is really nice of her to do such, in my opinion.

Every nurse I have dealt with here has been super.  So far I am enjoying my little visit to the hospital because the people are so cool.

The doctors are trying to get me to get up and walk.  I have no problem with that.  I will walk several times a day.  Just when I am not walking, I prefer to be in bed.  It’s my jam.  It’s what I do.  The doctors can’t seem to get this concept around their heads. Oh well, they can lecture about getting up all they want, I  will still do what I do.  Which includes not a lot of sitting.

Well, the pharmacy fumbled the ball, it’s almost 1pm and my noon chemo hasn’t arrived.  This chemo running late is going to cause my 6pm chemo to be late, which is going to cause my middle of the night chemo to be late.  Grrr  The pharmacy isn’t impressing me much.

Last night I got my last med after 1am cuz the pharmacy couldn’t get their act together.

I only slept about 3 hours last night cuz of the pharmacy and cuz of the pain involved with the hickman port.  DAMN that hurt.  It’s feel better now as long as I don’t turn my head.  I did however, get a few naps in during the day today when I was feeling a bit better.

Overall, I am feeling a lot less anxiety as this moves on.  I feel that these nurses know their stuff so good that it’s senseless to freak out about it.  So, I am not going to freak out about it anymore.  And I will feel better for it all along.

Peace to you my faithful readers, hopefully I will be getting chemo soon.

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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