And so we come to day -5

It’s Saturday, May 12, 2018, otherwise known as day -5 to me and my readers.  It’s 6:36am as I start this blog entry, so bear with my if it seems a little groggy as my sleep at night gets interrupted on a regular basis and mornings have never been my strong suit.

Steroids, anti-nausea, then chemo.  That is how this morning has went so far.  The Bulsufan hasn’t been too harsh as far as chemo goes.  TMI Alert-  I think I had my first tinge of diarrhea this morning, don’t know for sure cuz I wasn’t awake for it.  Diarrhea is the biggest side effect of both the chemos I will be on.

The good news is that I only have 7 more Bulsufan doses to go.  The bad news is then I get a foley catheter and the nasty chemo that I can’t remember the name of right now.  They have to catheterize me so they can send fluid into my bladder continually for 2 days.   Can you imagine feeling like you have to pee for 2 days.  Well, the catheter also sucks out the fluid.  I am guessing it’s just gonna be uncomfortable.


I’m drinking water like mad.  7 to 10 bottles a day.  Everyone says this is good, so who am I to argue?  I am eating 3 meals a day too, from room service, and although the menu looks glum for breakfast, I am sure I will find something to eat this morning.  Perhaps I will try their blueberry pancakes.


I have it cold in my room, cold enough for people to comment.  Almost everyone who has commented says it feels nice compared to other rooms which are really warm.  I think I might be the youngest patient on the floor, which is neither here nor there, just a point of fact.


I still feel really good.  My Hemoglobin went up a bit, my platelets dropped a bit and I am unsure if they are tracking my white blood cells.  But they have me on anti-fungal, anti-bacterial, and antibiotics.  I feel like I am in good hands.  The nurses here are all top notch, great people, I am happy to have chosen Mayo Clinic over the other alternatives.


Teresa decided to sleep in today, which I think is a good thing for her.  So, I don’t expect to see her til noon or so.  I told her she needs to take care of herself more especially while I am not really sick yet.  I love her and I don’t want her to make herself sick trying to take care of me.


Dogs are getting along decently at my mom and brother’s house.  Mojo has taken to pooping in the kitchen and Pucky will only poop on the pads.  But beyond that, all the animals seem to be working out a pecking order.  So it’s all good there I think.


55 minutes until the chemo is done.   I should grab the phone and call room service in 2 minutes.  Gonna try their blueberry pancakes.  Hit with a wave of tiredness though.  UGH.  All is well here in Mayoland.  Just wish that I could warp forward a few days and get this over with.


Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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