Day -4 and counting

Day -4 has arrived.   My nurse I started with was changed during the night.  But that’s all good, he couldn’t hang my chemo so he was voted off the island.  Well, not totally off the island, but rather he got bench duty and running around.  It’s a shame though, he is a really nice guy from Africa (cool but hard to understand accent) and just loves it in American.

Day -4 is significant in the fact that today will end the 4 Chemos a day.  So, I am getting my 6am one now, will have noon, six pm, and midnight and be done with this first chemo.  My blood stats dropped a little.  Hemoglobin enough for me to want to ask when they infused Blood.  (Reminder to ask when they infuse blood).

With the exception of being really tired after walking, I have not experienced any horrible effects from this first chemo.  I am not so sure about the chemo that starts tomorrow.  Dr Alkhateeb said it’s worse than any chemo I have been on.  I only take it for 2 sets of 2 hours over 2 days, but I have to get a Foley Catheter and have my bladder continuously irrigated.  Pretty scary stuff in my opinion.  I will post about this more tomorrow as things get started with the new chemo then.

Wednesday I get to go “home”  Well, the Gift of Life Transplant House.   I get to be out of the hospital so they can do the outpatient transplant on Thursday.  Everyone keeps saying that it’s an unsure thing as to when my stem cells will arrive from Germany.  I don’t care when, just want them to come.  If they don’t arrive by 9pm, the procedure gets put off until Friday.

My mental state has been solid good during this hospital stay.  Laughing, joking, having a good time.  I think that is part of what makes me such a good patient that nurses like helping out.  I don’t ask for much, so I am not a pain to them.  And all the nurses are really cool, that helps a lot too.

I experienced the first sign of chemobrain though.  I couldn’t read 3 and 4 letter words (AGAIN).  Trying to read a post on Facebook it took me about 5 tries.   Chemobrain is coming back and I can’t possibly say it’s welcome in any way.

I get a kick out of all these medical people who come in to my room to tell me how great I look.  LOL.  I still say I am not sick.  Or the only sickness I got is from the chemo and it’s not going to keep me down for long.  Here’s hoping I don’t get all the neutropenic fevers and infections I got in 2015 and my life can get back to normal sooner.

Pretty soon the new nurse should be coming in to introduce herself (there I am being sexist as there are 5 male nurses who work here).   Odds are it’s a female.  Anyhow, I like meeting the new nurses, keeps me on my mental toes trying to remember names.

Nothing major happening right now, so I am gonna cut this short.  Gift of Music on the way.

Yeah, a totally random video.

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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