Day +61

39 days to go.  Probably spend em all with this stupid cold.  According to my doctor my viral cold has turned into a fungal cold which is much more dangerous and harder to treat.  He is talking about putting me back in the hospital.   I, of course, don’t want to go back in the hospital, but if that is what it takes to finally get rid of this cold, I’ll do it.

He talked about (I forget what he called it, and it is kinda gross) putting me under lite sedation, sending a camera down my throat, putting saline in my lungs and then sucking all the gunk and saline out.   A little extreme for a cold I think, but again if it’ll finally  get rid of this cold, I’ll agree to it.

I woke up at 7am this morning, wide awake.  It’s just now 8 as I am writing this blog entry.  New CPAP program works wonders.  The old CPAP choked me, the new one helps me breathe.   I am getting a much better nights sleep (around the coughing).  Wish I had come up here 2 years ago when I got the damn CPAP in the first place, maybe I wouldn’t have had to go thru CPAP hell first.

Teresa is driving to Des Moines and back today.  Her pain doctor demanded she come in and see him before he’d write any more prescriptions.  So off she will go.  She is driving down, seeing the doctor, then driving back.   Only 7 hours on the road.  3 1/2 each way.  Not too bad.

Mom is stepping in as  my caretaker today.  Hopefully I  won’t need caretaking.  No, I am not saying mom couldn’t take care of me, I am just saying hopefully nothing goes wrong and I don’t need caretaking.

Can’t start any new course of treatment until I am over this cold.  We cut prednisone by 20mg again.  Not a new course, same course.   BORING.  I want to get on with this.  Dr. Alkhateeb might be too cautious of a doctor for me.  But he gets good results, so who am I to question him?  It’s just sitting here week after week, day after day, doing the same old thing.  OK, the cold has thrown a monkey wrench into all his plans.  Maybe I am not being fair to him.  I’m just getting bored silly doing nothing.

Yesterday they ran a whole boat load of cultures on me.   Which means they took a lot of blood from both of my port things and from my arm.  They are trying to find out for sure what is wrong with me.  Those results should be in already.  They also did the CHIMERA test, which shows how much of the new stem cells have control of what.  Last Chimera test showed 100% German, they said that was odd should only be like 85-90% this time.

I feel like drek.  Been sick too long.  Not getting better. This sucks.  The transplant itself went great. I couldn’t have asked for a better outcome.  Even the GvHD that I have had hasn’t been that bad.  But viral pneumonia followed by a fungal cold just plain sucks.

I’m done whining.  Let me find some music.

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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