I think it’s Day +79

It is August 4th, 2 days before my birthday.  For the first time in many years I have no clue what Teresa got me besides the big gift, and she hasn’t even let out a hint.  Normally, I am not a surprises kind of guy, but a good surprise is something I kinda need right now.  So, while the rest of the world is recognizing Adam Martin and Stephanie Lowe’s birthday’s today.  I am getting ready for my birthday on the 6th, well mentally.  There isn’t a whole lot physically I can do to prepare.   The cake was ordered a week or so ago, Teresa took care of that…  Vanilla with a raspberry filling.  Oh so yummy.  Teresa was going to make me an ice cream cake, but she doesn’t know how to make a white cake.  She is a great cook, not so much a baker.  Anyhow Daubie’s bakery is the place to get cakes from in Rochester, and that is what we are going to do.  And we have plans to not share it with anyone in the House.  <insert evil laugh>.


The cough is FINALLY getting better.  Only about 10-15 minutes of coughing before falling asleep.  Random coughing now and then during the day, still worsening in the evening.  But even at its worst it’s no where near as bad as it was.  It seems that adding the Advair really helped a lot.  I have been on it for 8 days and can see a marked improvement.   Right now, I am lounging in bed, NOT coughing very much.  Something I couldn’t do the day before yesterday.    So, WOOT, I am on the mend.   When the Nurse Practioner listened to my chest on Thursday, I was clear.  Shocked the heck out of both of us.  Too bad nighttime doesn’t follow daytime when it comes to this cold.   It’s all good though, it should be almost over.


I think I am on day +79 which means 3 weeks until we are out of here.   I know 90% of my meds, which Dr Alkahteeb said I had to know before he would release me.  No sweat on getting the last 10%, I will have them this week.  It’s going to feel weird going home.  110 days is a long time to be away.   But it’s all good, with my brother and mother bringing our dogs to us on that Tuesday I believe, the dogs should be as happy to see us and we will be to see them.  They are what we have missed the most about not being home.  Followed by our kitchen and then our toilet.   Teresa doesn’t not like cooking in the communal kitchen, but prefers to cook on her own in her own kitchen.  And as for the toilet, doesn’t everyone prefer their own throne?


I guess Teresa isn’t going to the farmer’s market this week.  She is sleeping in.  I don’t blame her, my coughing is keeping both of us awake.  And since I am awake now and not coughing much, she is making up for lost sleep.  It’s not like we  needed anything from the farmer’s market, Teresa got a lot of good vegetables last week.


Our car, the one we drove up here, is having problem.  Making god awful noise that started as a rubbing sound in the back, but Teresa describes it now as a horrible sound that sounds like the “suspension is going to fall out”.  So, we are going to have to find a reputable mechanic up here (probably the local dodge dealer) and have them take a look.  We don’t have lots of money, but should be able to afford to fix our car.  I wouldn’t want in dying on the way back.   And what truly sucks is that the warranty just ran out on the car.  Oh well, it’s just money, right?


Facebook is being stupid, they are not allowing my WordPress post to automatically post to Facebook anymore.   I will be posting the url to this blog entry on my Facebook feed and anyone who wants to read it will have to click the link and hopefully it will work.  I sent a rather wordy message to Facebook asking them to change their minds.  I don’t think it’s going to work.  Oh well, the people who want to read my blog will find their way here I am sure.


I think I start my last chemo sessions not next week but the week after.  Dr A is running out of time.  The chemo is going to happen 5 times over 5 months for 5 days.  But it is all done out patient, so I do not have to worry about staying at the hospital.   Dr A wants to get the first round in while I am here.  Just in case I have some weird reaction.  Solid plan, if you ask me.  I still don’t want these last chemo’s, but have resigned myself to getting them.  Besides, Dr A is going to let Dr Wehbe administer most of this chemo in Des Moines.  Where I get to go home between injections.  Oh yeah, they are gonna inject into my port so I don’t have to have stomach shots.  WOOT.


I have had good days and bad days.  Well, mostly bad evenings which followed a good day.  Has made it tricky on dinner plans.  If we don’t eat early, I often feel too unwell to eat.  At least this has been the case until now.  But things are getting better, and I may be as weak as a kitten, I plan to start using the exercise machine room next week (after my birthday).  Short bursts but lots of them, yep, that is what was recommended to me by 2 different nurses.  I need to build my strength up a bit before I go home.  Right now I can’t even pour a gallon bottle of water.  pathetic.  Chemo followed by Prednisone did me in good.


<YAWN> I think I am heading for a nap.  As mentioned before, I haven’t been sleeping good….  better with the new cpap programming, but still having issues.  So, an early nap might very well be in  order.


Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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