Day +85, 2 weeks to go.

I would say I am excited, but I have the strange feeling that Dr. Alkhateeb is going to make us stay longer.  Just a hunch.  But let us assume he is not, 2 weeks is not a long time at all.  We will get home, we will get our dogs back, we will begin living life again (sort of).  The chemo I have to take is 5 days long, and will happen 1 time a month for each of those 5 months. So, I should be done for Christmas.   I will feel like Hell most of those 5 months, I will be getting blood and platelets on a semi-regular basis.  I still don’t think this “bump” chemo is necessary, but everyone else is on board, so I have little to no say in the matter.   Anyhow,  I should be feeling good January/February time, until then, I will fake it.


The rash is gone (again, finally), now all I got is shuffing skin.  That is dead skin peeling off from everywhere I had the rash.  My back,  my chest, my shoulders, my FACE.  The rash didn’t itch, but the shuffing itches like mad and every time I scratch I got a handful of dead skin.  But the point here, really should be, the rash appears to have run it’s course, and so ends GvHD at this point.   This is a good thing.


Oh yeah, I woke several times last night.  Nothing new there.  What was new was falling back to sleep without coughing.   Seriously, 1 cough is all I recall for the whole night.  Teresa slept better, I was able to get to sleep better.  Don’t misunderstand me, I still cough a lot during the evening, but when I laid down to go to sleep I was silent.  WOOT.


I have not watched TV except a little tiny bit of HGTV and FOOD NETWORK for 85 days.  I have no clue what is going on in the world.   Only news I get is thru Facebook and we all know that most of the news that comes thru there is biased one way or the other.  I thought it would drive me crazy not having TV, but it hasn’t been too bad.   I am definitely looking forward to going home and watching out big screen at the foot of the bed.  I WILL get back into watching the Channel 8 news and CBS or NBC Nightly news.  Guess I have a need to be informed that I have been squelching.  Won’t have to squelch it any longer, starting in 2 weeks (hopefully).


Teresa figured out that if I get the chemo next week, my blood numbers will fall about the time we are going home.   That sucks.  That sucks in a major way.   But that is how it looks like this is going to be going down.   I just hope I am not super sick on my way HOME.  I wouldn’t want to do that to Teresa.  As it is she is going to end up having to cart everything into the house, cuz I am still very weak, and more chemo is just going to make me weaker.  Bleh.


I started working out on a Total Body Recumbent Stepper.  The Gift of Life Transplant House has a most unused workout room in the basement.   So Teresa rides the stationary bike, and I do arms and legs with the stepper.  Right now, I can only do 10 minutes and it’s difficult at times.  But I am doing it.  Trying to get some of the muscle back that chemo and prednisone took away.  2 more weeks of that.  Nothing (but maybe feeling sick) says I can’t work out on chemo days.  I am going to try to convince Teresa to buy me a stepper, but money is what money is and a good quality stepper is 650 bucks.   The other side of the argument is, I kind of need it.  I believe it’s the machine which holds the fast track to getting back into “shape” (like I ever was), well get some muscle back at least.


Oh, I forgot to mention this, I finally beat Civ 4 Warlords on Conquest mode without using Nukes.  I got the worse rating, took me until year 2150 or so, took about 12 hours of real time, but I finally did it.  I even know what I did wrong, what took me so long.  Just having problems implementing the solution.  And I use Augustus Cesar as my leader, he gets Praetorians as his special unit.   They rock at love level.  But are slow will movement speed of 1.   Well, when you are on a HUGE landmass.  Getting from the point of creation of the Praetorian to where the battle is taking place can take 35-40 turns depending on where the city is.  And 35-40 turns sounds like a long time cuz it is a long time.


My birthday I got gifts, the day after my birthday I got my cake, and the day after that I got my birthday dinner.   Heh, 3 days to celebrate a birthday, I must’ve done something right.


It’s almost time to head out to see the doc, so I better wrap this up…….


Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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