Day +92, the day we should be going home

In a perfect world, I guess I wouldn’t have cancer.   OK, so in a more perfect than it is world, we would be going home tomorrow.  Dr. Alkhateeb agreed that I shouldn’t be here anymore.   However, I got this stupid abscess under a crown that means I have to get Hickman catheter removed and the earliest they could removed it was Tuesday morning.  So, we are stuck here until Tuesday afternoon.

Then we get to come back next week to have the tooth removed.   We will be here Sunday, Monday and Tuesday.  Monday will meet with the nurse practitioner and get an update.  Tuesday I will have the pesky tooth removed, so the abscess will be drainable.  It’s a little abscess, teeny tiny cuz I have been on 500mg Penicillin twice a day since my transplant.  That is what the dentist guy said he would have prescribed to make the abscess go away.  Anyhow, this abscess freaked out good Dr. Alkhateeb, so he had his nurse find me an appointment to have a tooth removed and that is on the 28th of August.  Which was the Oral Surgeon’s only appointment available in the next month.

I have lost about 30 pounds over the course of this transplant.   I am somewhere around 200 pounds for the first time in about 15 years.  It feels good.   I am healthy.   I am eating better.   And I lost the weight under the eyes of a doctor and a boat load of nurses, so I did it rightish.   I wanted to be 200 pounds again, this gave me the opportunity, glad I took it.

I start Vidasa chemo in 3 weeks.  It’s 5 days of chemo then 3 weeks off.   Set for 3 or 4 runs.  Dr. Wehbe’s team will be administering the chemo back home.  It means shots in the belly (bleh), but this is the way its going to be.  I will also be having regular blood tests at Dr. Wehbe’s office.  So they will be seeing a  lot of me.

It’s going to be good to be home.  We will get there around 4 and Jim and Mom and the chihuahuas will be there around 6 or 7, mom stops a lot.  OH, it will feel so good, having family around and having the doggies back.   Can’t wait.   Will almost hit day +100.  But will actually get out of here on day +96.

Now we have to start watching for chronic GvHD.  These GvHD’s come on harder and meaner and stay with you.  They try to treat them, but have marginal success.  There is a new study out for a new med to treat chronic GvHD, but it’s a blind study with 1/2 of the patients getting a placebo.   With my luck, I would be in the placebo half.    Anyhow, we are definitely on the lookout for signs of any of the chronic GvHDs.

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

3 thoughts on “Day +92, the day we should be going home”

  1. Sorry about the abscess. I also have terrible luck with teeth. I am home from my surgery, although my recovery is taking longer than I expected. Oh well. I have a genetics consultation soon and some follow-up procedures in the works, but otherwise I think I am out of the woods for now. I hope you are too! Enjoy going home! 🙂


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