Notes to self and other thoughts

I unintentionally have given up eating.  I am down to 191.6lbs.  Which is absurd for me, considering when I went to Mayo and checked in I was 236.4lbs.  Admitted that was the heaviest I had ever been.  I sure as hell aint going for the lightest I’ve ever been, that was be plain silly.  NOTE TO SELF :  EAT MORE.

While I have given up eating, I slowed way down on my liquid intake too.  That is messing with my kidneys.  More concerned about this than losing the weight.  NOTE TO SELF :  3 GLASSES or 3 BOTTLES or any combination to equal 3.


Tomorrow I have a first appointment with a new therapist.  She seemed nice enough on the phone, it’s just that my fatigue has me sleeping until 2:30 – 3 o’clock, where my appointment is at 1:30.  That’s gonna be tricky.  Hope I don’t fall asleep in her office.  Wouldn’t be the first time I fell asleep on a therapist, but first time on one I don’t know.


D&D is ready to roll.  Well, except Devin is still in Ireland.  And we haven’t tested mumble with everyone yet.   I am pretty sure that at least 1 is gonna use plumble (the mobile version of mumble).  Need to get everyone on and chatting before the game night so we can get the game going quickly.


If, by some miracle, I do the slim margin and come out of this alive.   I’m gonna throw a party, invite everyone I know and even some that I don’t know.  It’ll all be good.  Work out some deal with one of the hotels in West Des Moines (cuz the motels down the road are kinda skeezy), so maybe some of my friends and family who are a ways away will be able to make it.


Now for the reality folks out there.  Teresa and I are gonna take a cruise, or go to Harry Potter Land for a few days.  We haven’t quite decided yet.  I’m not big on the Harry Potter thing (SHOCK) so HP Land doesn’t feel me with excitement.  The cruise is 8 days long and have We Will Rock You playing during the cruise.  That’s more my style.


It all depends on when I find out one way or the other.  Until I don’t feel good, I plan to visit with friends and have a good time.  BLEH, until I am sick, I am ok.


I have a bucket list, but most of it is too expensive.  Learning you are gonna die AFTER paying all the medical bills.  Not the smartest idea.  Should’ve RHINOED the bills, and went on vacation and then worried about the bills.


Teresa is gonna be hard pressed financially if I end up in a palliative home.  Hospices aren’t cheap.  At least not the nice ones.  And I wouldn’t stay in a not nice one.


I think my platelets are tanking again.   I have a big 3 week old bruise that looks a week old and the oldest.  I guess we will know on Friday when we make the trip up to Mayo again.  Yeah, it’s been 2 weeks.


 

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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