Hmm, when it was all theory, I had all sorts of people coming out of the woodwork about my party. Now that I have asked them to supply me with (in some cases) real name and snail mail address, the new mail address seems empty. Yes, I was having a problem with gmail so I switched to firstname.lastname@example.org. SO, if you read this and are coming or even thinking of coming to my AINT DEAD YET party on March 30, 2019, please email you name and snail mail address to email@example.com
My good mood is actually starting to fade. I am planning for a lot of people, cuz a lot of people have said they’d come. Now people aren’t rushing out to send me their snail mail addresses, makes me feel that the party isn’t worth having. BAH, I am just being silly, my friends will come thru for me.
I’m gonna hold off putting any deposits down for a little while, until the number of names/snail mail addresses climbs. Don’t want to be left holding the bag so to speak.
Mom said that she and Jim are coming for sure. And a scattering of Jackson clan too. So actually with the addresses I got I have about 20 committed. I’m just gonna have to reach out to some of the people who were positive and get that number to 50. Shouldn’t be too big of a problem.
Healthwise I am still doing ok. Nothing new is going on in that arena. And I am thankful for that. Yeah, I have some GvHD which coincided with the lowering of my immuno-suppression meds, that has Dr. A. kind of befuddled. I mean he knew it was coming, just confused as to why it’s not worse maybe.
Beyond that is the biggest concern, MDS phases into AML. Normally it’s no big deal, normal AML is pretty easy to treat 1st time. 2nd time, things will get ugly, chemo-resistant AML No way to treat, it’s just a game of wait until you die. THIS IS WHAT IS MOST LIKELY TO HAPPEN TO ME.
So it comes down to either Chronic GvHD (the real bad kind) and or incurable AML.
Dr. A. refuses to give a time, because he is still treating me. He is talking IV chemo started while on ammuno-supressives. Isn’t supposed to be that way, but we are in desperate times, and desperate times require desperate measures.
We shall watch and live and fight thru this and really hope for the best.