Went to Mayo… again

Yup, yesterday was our not so normal after hospital stay visit with Dr. Alkhateeb at Mayo Clinic.  Once again, it was a visit we could have phoned in, but he did answer a question for me… “If what you are trying fails, how long do I have to live?”  His response, “certainly months, 6 months to a year.”  I respect him that he would just come out and answer me.  Not every doctor would.  So, I still think the odds are very much against this plan of his working, the one he personally gave slim odds to.  So I am figuring on living 8-10 months, which means my party at 6 months sounds good.  More on the party in a bit.

Dr. Alkhateeb hugged me.  I am not sure how I feel about that.  I hug Dr. Wehbe and it’s nothing, but part of me just doesn’t think Dr. Alkhateeb is at the hugging stage.  But what the hell, it doesn’t hurt.  He really is on my side.

Dr. A also moved us to once ever 3 weeks.  That is a nice move on his part.   Every 2 weeks seemed like we were always on our way to Mayo, every 3 weeks sounds more reasonable.

He thinks I might have I forget what deficiency.  One that has the simple cure of a steroid taken twice daily.  This steroid should take care of my nausea, my fatigue, my lack of hunger, my lack of thirst, and a small litany of other things that have been bothering me.  The only problem is, steroids put me to sleep and sleep and sleep.  Like 16 hours a day sleep. But we’re gonna give them a try and find out if it works to fix my eating and drinking.

All in all a good visit to Mayo.  If we can stop the 5am wake ups, and the 9pm returns home.  That would make them great visits.

“AIN’T DEAD YET” Is definitely going to be on.  The party should be good.  Still don’t have a ton of people’s addresses yet.  I need those for invitations in January.  When I posted about having the party, I had well over 50 people say they wanted to come.  Now I don’t even have 20 addresses.  Guess I will have to spam Facebook again.

I have decided on where its going to be:  American Legion Post Urbandale

I have decided who is catering              :   Big Al’s BBQ

Alcohol                                                         :  Bring your own

DJ                                                                  :  Brenna Young

DATE                                                            :  March 30, 2019

TIME                                                             :  To Be Determined

I will be releasing the hotel information with the invitations.

I’m in the need of a party.  Have people coming from all around.  It’s going to be great.  Just hoping I will still have the energy to play gracious host.  Its gonna suck if I am way down for the party.  But one way or the other the party will go on.

I am sure I mentioned this, but D&D went well last Tuesday even though I felt like total crap.  I am looking forward to the next session.  I should feel much better for it.  I get a 2Litre saline infusion during the day on Tuesday. So I should feel pretty damn good.  As long as they dont give me steroids again.

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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