Poor Pucky Long Day D&D and MDS

When we got up this morning (at 4am) Pucky (our older chihuahua) was in bad shape.  He was limping, jerking if you touched his back, running a fever.  He was one sick doggie. Well, we had to make the trip to Mayo today, so we left with hopes he would still be alive when we got home.  Well, good news, whereas he is still limping, and still doesnt want to be touched on his back, his fever is gone and he is being much more mobile.  Thank the gods for that.  He has an appointment at the vet in the morning.

At 4am Alexa went off to wake me up.  I got up, got a shower, got dressed, and was ready to go by 4:30.  Then we dilly dallied until 5am when we left.  We got to Mayo at 8:20, not too bad.  Did blood test, pneumonia breathing treatment thing, and saw Gabe the pharmacist all before lunch. Had 2 hours roughly to kill for lunch.  Then we saw the man, Dr. Alkhateeb.  Dr. A wouldn’t let me off tacrolimus just yet.  But I will be off it in 2 weeks.  WOOT.  And he took me off of MagOx, Vitamin C, and Folic Acid.  Plus after I am off tac I come off Cresemba in a week.  BOOM, lots of meds I won’t have to take anymore.  He even agreed to 2 months between visits.  However, the crappy thing that is happening is I won’t get my bone marrow biopsy before the end of the year.  Won’t get it until the end of January.  BLAH.  Oh well, I am doing good now, unless something horrific happens, we just assume the best.  We got home at 5:30pm

I’m dealing with SAD as best as I can.  It sucks.  Bipolar sucks, SAD might just be worse.

Sunday’s D&D game is set to go except for one player.  Last I heard she was looking for a discount code for dndbeyond before she spends 300 bucks there.  She promised me she would have her character one way or the other by tomorrow.  So, with her character done tomorrow, everyone’s character will be done and we will be ready to rock and roll.

Tomorrow’s game however is still in limbo.  I was gonna do undead, but decided against it.  Oh I think I already wrote about this.  I can’t find a good adventure hook.  DM Block.  Kinda like writers block.  I just haven’t been able to figure this out.  This one will either turn out to be great or go down as a sucky one.  I preappologize to my players if it blows.

Last week Thursday’s game was fun, no combat, that’s cool.  But roleplay I had real problems getting into.  Really not like me to not get into roleplay.  I blame it on SAD, throwing me off my game.

OK, this is for the new readers, which I have several which is cool.   I have MDS, Myelodysplastic syndromes.   Which is a disorder of the bone marrow.  Where blood is made.  MDS eventually turns into AML, Acute Myeloid Leukemia.  Which I was treated for in 2015.  Since my stem cell transplant procedure failed.  We are hoping that the new stem cells took it on their own and went and destroyed the bad stuff and rebuilt good stuff in my bone marrow.  If they did, then yay I live.   If they didn’t, then I probably die soon (within a year to 18 months, but a lot of that would be in a hospice.)  Odds are I am probably gonna die.  The bad was just too much to hope that the new stem cells could fix.

So when I say I am dying, its because that is my reality right now.  The bone marrow biopsy I have in January might (very small chance) prove me wrong.  But anyway it goes, I do not want chemo again ever.  So even if there is improvement,  I still will probably die.

OK, that’s enough depressing stuff…  Let me find some music

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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