Everything changes

Woke up this morning at 5:15am.  We got out the door at 6:30am.  Trip was uneventful except for semi who jackknifed in front of us and fell over on it’s side.  OMG, the wind was fierce, picked the back end of the semi up like nothing and threw it around.  Luckily the driver was ok, just shaken up.  But it caused us an hour and a half delay because his truck blocked both lanes of the northbound 35 and there was no getting around him.  So while I went to check on the driver (I was trained as an EMT in California many years ago, if he was hurt I could have helped), Teresa called 911.  Being as we were in the middle of nowhere Iowa it took over a half hour before the first cop showed up.  Another 10 minutes for an Iowa Department of Transportation truck to show.  30 minutes later another cop shows up.  Then about 15 minutes later, a couple really big tow trucks show up.  A little car jockeying around and they got the truck on its wheels and one of the tow truck guys drove it to the closest town with a garage.  Only when the truck and one of the cops was kind of far down the road were we allowed to go.  We had called Mayo to let them know we’d be late.  We were 1 hour and 40 minutes late.


Got to Mayo,  got my blood drawn.  Didn’t know this for sure, but my numbers are fantastic.  Non-cancer patient normal.  Bummed out that blood type is still O Positive.  It’s supposed to change to A Positive cuz that is what my stem cells are cranking out, and it’s supposed to happen within a year.  It hasn’t quite been a year.  Next month, the 17th will be my 1 year birthday (They call it your birthday when you get a stem cell/bone marrow transplant), and for my birthday Dr. Alkhateeb is giving me a Bone Marrow Biopsy on the 22nd.  But anyhow, my stats (numbers) rock and they have since November.


So, even though we were an hour and forty minutes late from blood work, somehow we were 55 minutes early for our next appointment.  It was the pharmacy appointment, we were told it would be with Kristen and 5 minutes later Gabe walks in.   Gabe is the coolest of the pharmacists we deal with, so we teased him about making life choices and how we wouldn’t judge.  Pharmacy appointment then went like they all do.  Teresa reads off the meds and dosage, Gabe checks them off in his computer.  Then Gabe goes over anything in his computer that Teresa didn’t cover, Zyrtec, Tylenol, that sort of stuff.


Then came in Teresa (the nurse, my wife never left).  She asked the normal nurse type questions and then proceeded to tell us exactly what was supposed to happen tomorrow.  Then she went thru all the GvHD information again.  Then she called to confirm what time to be at station 94 tomorrow.


Then Dr. Alkhateeb comes in with Teresa (the nurse in tow).  First he slimes me with the hand sanitizer stuff.  He didn’t rub his hands together enough, it was a full on sliming.  After giving him a hard time about that he said we were going to do the Stem Cell Infusion right now after all.  After all the anxiety I have went thru in the last few weeks, just no.  The reasoning was valid though, my stats are so good, why mess with them?  And what happens in a few months if my p53 gene mutates again and I need the Stem Cells then?  They only had 2 bags of Stem Cells for me, so he decided it better to just not give them to me now.  I was all, “That’s great, I didn’t really want to do this anyway.”  And that is when he said a bone marrow biopsy on May 22nd.  Also he is going to get me my baby shots on that day too.


So, we had Pasquale’s for a late lunch and then head for home.  We got home at 6:55pm.  Teresa made good time getting home.  After unloading the car and getting stuff put away, I started writing this blog, it 8:06pm now.  So, anyhow, that was our day at Mayo.  A bit of excitement on the way.  Same old same old for most of it.  A big surprise from the doctor.  Then a really great Stromboli, and a long drive home.


After eating breakfast and lunch I just weighed in at 209.0.


My mother-in-law was not here to greet us when we got home, she went to church tonight.


A good man died last night, Dave Fair.  He wasn’t a close friend, but a friend none the less.  I won’t get religious or philosophical here.  Just know, Dave, you will be missed.


Well, Danny once again didn’t send out information on his Sunday game when he said he would.  It might have been because of Dave’s passing, or it might have been for a myriad of other reasons.  Just sort of getting tired of waiting.  I want to enter Cracked into roll20 and level him up to 4.  I am very much looking forward to playing.


I mentioned on the May 22nd visit to Mayo I am getting my baby shots… FINALLY.   That will allow me to go to school.  Yeah, considering I got a stem cell transplant I could get a medical waiver, but I would rather HAVE the immunizations so I have less chance of getting sick from something stupid.


School, heh.  Now that the anxiety from the stem cell infusions is no longer a pertinent issue.  School anxiety has hit and has hit pretty hard.  I am 132 days out (yes, I counted) and I am anxious as all get out.  Yup, replace one anxiety of something immanent for something over 4 months away.  UGH, this is going to be a long summer.


However, this means I WILL be able to go to my brother’s summer party on June 22nd. And that is cool cool cool.  I will drive in on like the 20th and out on the 25th or something like that.


That reminds me, I need to call my mom and tell her my good news.


I sat too much today, my back is killing me.  5 hours in the car on the way up.  3 hours at Mayo.  4 hours in the car home.  Then close to 2 hours writing this Blog on the big computer.  Too much for my poor back.  Oh well, I will find where Teresa packed my pain pills and pop one, this is what I have them for.


Oh, maybe Monday I will go up to the college and start learning sign language, since I don’t have GvHD hanging over my head.  Get there early enough to take the pic for my student ID.  Get the parking permit straightened out.  Do whatever else I need to do up there.  Yeah, depends on Monday’s weather I guess.  KCCI says 64 and partly cloudy, perfect day for a drive up to Ankeny.


Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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