the drop continues

I’m glad that I posted what is going on so I can just blather through this without having to censor myself.  I had another blood test today and my platelets were in the 90s, they were clinging to the 100s last week, so the drop rate has slowed down but they are still dropping.  I saw my report from a year ago where they were 227, heh, I was living it up then.  At least my bone marrow biopsy is scheduled for this Friday.  Don’t have too long to wait to find out if cancer is back.  Just two Fridays away.


My party is on, regardless of bone marrow biopsy results and regardless of Dr. Alkhateeb’s wishes.  My brother brought up a good point, I am alive NOW, so I AIN’T DEAD YET.  Might be the last time I get to see some of these people so I will have my small party and have fun.  Mom thinks I have the menu picked out already, but I am looking at options still.  I have till August 3rd to pick my place for catering and it may be August 2nd when I make up my mind.  Most important thing is, I do not look sick.


Teresa already got her car from the shop so I am here writing this blog instead of picking her up early from work to fetch her car.  My car goes in the shop around 4:30 and I do not expect to see it for a few days.  And a few thousand dollars.  That is what I get for driving a 14 year old car, things start to get old and need to be replaced.  It’s all good, we budgeted for this.  Just annoying that cars get old.


I actually got up at 7:30am to be a the dentist at 8am for this temporary crown.  I did not expect getting a temp crown would take 2 hours, but it did.  So, I can eat on it, just nothing hard or sticky.  I’m fine with that.  The regular crown gets put in on August 5th at 1:00pm. I had the option of getting the crown on my birthday (August 6th) but I chose not to.  The 6th is to be a day of rest as the 7th I drive to my Mom and Brother’s place in the Region.


Aravas isn’t running this week, or next week, or for 2 weeks after that.  We should be able to resume on the 20th of August.  I want everyone to be there for the slimy gnome, but it’s summer and crap happens in the summer, so scheduling is being a slight nightmare.  Oh well, Jason is running a one shot tomorrow night.  I don’t know what is going on next week.  But then I am gone for 2 weeks.  I just hope I don’t lose anyone.


I love my new glasses, the version 8 auto-tinting works beautifully.  I like it, I like it. These glasses are so much lighter than my last pair.  They hardly feel like they are on.  And they look good on my head.  So many glasses look great until you put them on my big head.  These particular Oakleys were made for a big head obviously, yet they look so normal when sitting somewhere.  They are cool.


OK, I am not as tired today as I was yesterday (and the day before, and the day before, etc..).  I say that cuz I finally have my cortisol level back to normalish, and that helps me be more awake.  I also took a 2 hour nap in the middle of the day, but I did that more out of boredom than necessity.  I take a lot of naps more out of boredom then necessity.


I made Teresa cry yesterday when I finally told her I don’t want any more treatment for cancer.  She asked me ,”Are you just going to die then?” and I shrugged.  I do not have all the answers, I just know how I feel and I am tired of it all.  But the point is kind of moot until we get the results of the bone marrow biopsy on August 2nd.  But I see it now, August 2nd the results are bad and I have cancer again.  Dr. Alkhateeb wants to start a DLI then.  I say No.  Big argument ensues.  I win because I am the patient.

Teresa asked me if I would get Palliative care.  I told her No, but I think I might change my mind about that.  There is a couple of choices here in Adel for Palliative care.  I don’t need it yet, but if I don’t get treatment for cancer and I have it, then yeah, I will need it.


Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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