Party is on…

I still don’t feel sick.  Yet the test say it is imminent.  Not to worry though, Dr. Alkhateeb will have a plan ( won’t say good plan ), but none the less, a plan to get me back on track.  I won’t be getting chemo cuz my blood is still 100% donors, so chemo wouldn’t do anything for me.  I’ll probably get two DLIs, which are bumper infusions of donor stuff.  There are the ones that can cause wicked Graph vs Host Disease (again).  But they are probably the best chance of saving me, so I will go through that insanity again.


Weird thing happening though, while my transplant has started to fail, my skin has never looked better.  They dry skin that I had all my life, which got worse with Graph vs Host Disease, looks great now.  Weird, weird I say.


OK, I am dropping around 30 points in platelets a week.  Some calculations by Teresa showed me that I would not run out of platelets till AFTER the party.  And laying around the house waiting for my platelets to drop would be insane.  So she (with a little help from me) devised a plan to get me to my party and back before my platelets needed tending to.  Now it’s time to convince/tell Dr. Alkhateeb how it’s going to be.  He isn’t going to be happy, but it makes a lot of sense the way Teresa explained it and we would still be at Mayo on August 15th.


So, as of now, Jeff’s AIN’T DEAD YET party is on.  Makes me really happy to say that.  I maybe really close to dead (literally) when I have this party, but I’m going to have it.  Warning to those that are coming to the party, I might be a little pale.  I know, you don’t have to mention it to me.


Mood is currently down though.  Too much medical crap all at once.  The fact that if we screw anything up, I’m dead, is a very depressing thought.  There is also the timing factor, if we miss anything due to time I could die.  Scary, depressive stuff.


We decided where we are going to dinner for my birthday…  Fong’s Pizza in Ankeny.  Fong’s does a mix of Chinese food and Pizza and almost everybody loves it.  We have never had it, so we are going.  It’s 11 days till my birthday.  I will be 49.


My car is fixed, I pick it up Monday.


Teresa, while freaked out herself, managed to logic me out of a huge depression last night.  Yeah, I was still depressed but not way down Doom and Gloom style.  For this I am truly thankful to her.  Now if I could only figure out what to say to get her unfreaked out.  I love her with all my heart and soul, I want to make everything right for her, but this is something I don’t think I can make right per se.  It’s totally out of my hands.


Me thinks I am going back to bed now.  Today is not worth being awake for yet.


Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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