Today has been a lazy day. Teresa is working from home so she can “watch over” me after the DLI. Which I appreciate greatly. I slept till noon and then caught up on Facebook and had lunch. See, I told ya its been a lazy day.
I have already started planning the Still Not Dead Party for next year. I have the distinct feeling that I will be around for it, so I might as well start planning it. I am thinking Lasagna and Gas Station Chicken as the main courses. Then corn, potato salad, coleslaw, fruit plate, and vegetable tray. I think that would go over well with the masses. Teresa has volunteered to make the Lasagnas here, and then cook them off at mom’s. That would work really well I think.
I am also thinking of moving the date up till the second or the last Saturday in June. Trying to avoid school times altogether. And hopefully it won’t be too hot outside. Jim has claimed the 3rd Saturday for his summer party. So, I am thinking the weekend before his or after his party. It’s already been cleared with my mom and brother, so it’s all good. But I might just leave it the second Saturday of August.
I still need to message Jennifer at Mayo and inform her that I came off of hydrocortisone. It wasn’t intention, but none the less I came off of it a couple weeks before she wanted me to. But Gabe (the pharmacist) was glad I came off it. My cortisol level will have to be checked, of course, but since it wasn’t bad when I went on it, I assume it’s fine now.
So, right now, the leukocytes that were added via the DLI should be starting to work. They have a tough job ahead of them, cuz my white cells already have momentum on taking back my bone marrow. It’s weird sounding I know. But my cells vs the donor cells, right now my cells are making a comeback and we don’t want that. Thus adding more donor fighting cells to wipe mine out again. Yeah, we are rooting for the donor cells to kick the crap out of my cells.
In all likelihood, I will be getting a 2nd DLI on Tuesday, September 10th. Just have to see how I react to the first DLI. But it’s so far so good. Day 1, I am feeling great. But if I am going to have GvHD from this, it’s supposed to happen in 1 to 2 weeks. And in 2 weeks I am headed back to Mayo so Dr. Alkhateeb can take a look and see what there is to see. it is possible that I won’t have any GvHD at all, we can hope.
Tomorrow I go see Dr. Wehbe again. He scheduled me in without warning me. LOL. It’s all good, I like Dr. Shorty. I have to get labs anyway. So, this visit is to prepare Dr. Wehbe for my need for platelets and blood for a while. The above mentioned fight between donor and my cells is gonna take a while, and meanwhile my numbers will continue to drop, thus the need for platelets and blood. Anyhow, funny thing, Dr. Wehbe emailed me last night just to check in with me, he forgot he made the appointment with me. So I am emailing him back and talking about the upcoming appointment and he is all what appointment? LOL So, Teresa and I go visit the short one tomorrow at 12:40. And it will be good to see him again.
I feel good. I’m in a good mood. I’m not anxious. I’m not scared. This cancer stuff sucks, but hey, whatcha gonna do, let it ruin you life early. Yeah, Dr. Alkhateeb put a death estimate on me. What if I just have fun until Charon comes to take me across the River Styx. Screw death estimate. I want to live.