Things to do, places to go, and all that

Today I slept till 11am.  Had to get up then to get ready to go see Dr. Wehbe.  It was nice seeing the short one again.  He confessed that he had forgotten that he was the one who put this appointment in the books.  Funny, it has been on the books for about 2 months.  Oh well, he was sorry to hear my MDS had returned.  Checked my blood numbers and was concerned but not to point of giving me blood or platelets.  That is still to come in the relatively near future.  For now we made the deal that if I need blood or platelets on the Mayo off weeks, he would write the orders for them, which is way cool of him.  In the greater scope of my cancer treatment, I like Dr. Wehbe better than Dr. Alkhateeb.  Dr. Wehbe is a genuinely nice guy and someone I am proud to call him my friend.

Other than that I took a nap from 3 to 5. So that makes about 14 hours of sleep in the past 24, I guess I am feeling a bit tired from the cancer.  But the truth of it all is I really like to sleep.  I like everything about being asleep, I don’t dream about having cancer very often.  I have great dreams most of the time.  And not having to live this cancer nightmare is a wonderful thing.  Dr. Alkhateeb would say I am sleeping entirely too much and its not good for recovery, but I would argue I am not recovering right now, we are waiting for the big crash again then we are gonna jump all over it.  Yeah, I will continue my sleeping habits and screw what anyone else that thinks I am doing wrong.

Mom has approved my proposed menu for Still Not Dead Yet party next summer.  Lasagna and Gas Station Chicken, Potato Salad, Coleslaw, Fruit Plate, and Vegetable Tray.  And she has said to leave it happening the 2nd week of August.  So, that’s pretty much been settled.  So, everyone set aside August 8th for Jeff’s Still Not Dead Party.  And it will be at my mom’s new house (hopefully).  Which will be cool.  Hopefully she will have as much room to sprawl out like we had at Jim’s house.  But I will just be happy to have the party.  Yup, it will happen as long as I live.

I messaged Jennifer from Mayo, she wants my Cortisol checked next week.  Cool deal, I just need to message her the fax number to fax the orders for the test to the lab.  The old order was no longer valid.  Shouldn’t be a problem, will remember to message her later tonight.

I am going to try to fenagle my way to Thanksgivingfest this year.  It literally might be for just that Saturday.  But hey, it’ll be all good to see even more of the Gang again, even though I saw most of them at my party.  It would be nice to see them again.  I miss my friends.

I’m sitting here now listening to YouTube’s Offspring mix.  Actually a decent mix so far.  Offspring, Rancid, Alien Ant Farm, Jimmy Eat World, all excellent bands.  But eventually all mixes on YouTube end up in the really weird or really bad.  But I have gotten close to an hour out of this mix, so I am happy.  I’ll be damned, I looked at all that is left in the mix, and I can say that with the exception of 1 song, I am cool with all in the mix.   About time someone made a decent mix all the way through.

Next Tuesday night, Aravas continues.  Yes, we had one game and then people (including me) couldn’t make it and I need everyone at the next session.  So, it kept being put off, now it’s time to resume.  I will not let a little thing like MDS ruin my fun.

Next Wednesday is another Mayo day.  But we don’t have to be there till like 1pm, so it’s only going to be a 12 hour day and not a 16 or more.

Next Thursday is the Cortisol test at 8am at Dr. Wehbe’s office.  When I made that appointment I forgot I am having a blood test on Wednesday but its not early enough for Cortisol, so I will keep said appointment.  It’ll be brutal getting up that early, but I will do it.

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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