Better shade of horrible

I feel a better shade of horrible.  3 days of feeling rotten is more than enough for any man.  I admit to being whiny, needy, crabby and a few other things.  But it could have been a lot worse and been lung GvHD which would have totally sucked.  Hopefully I feel better tomorrow, at least until I get my blood numbers which are, it seems, always depressing lately.


Yes, tomorrow we go to Mayo yet again.  I’m not quite sure what this visit is for, but we are going.  And thru fenagling the scheduler, we don’t have to be there till noon.  WOOT.  No 3am wake up call from Alexa.  We don’t have to leave till 8am and since we have hours between blood tests and seeing anyone, we dont have to be on time, so maybe we won’t leave until 9am.  Heh.  We have had a lot of visits we were unsure of why we were at Mayo for since this all started.  Last time, I asked, and was told “cuz we like to see you.”  OOOOKKKKKK But this visit is technically too soon to see if the DLI did anything to or for me.  All we do know is that it didn’t cause any acute GvHD, which we are happy about.  Maybe Dr. Alkhateeb was right and I won’t have any GvHD.  Would be nice to get cut a break.  So anyway, tomorrow I don’t know if I am seeing Dr. Alkhateeb or Dr. Shaw, either is fine with me.  According to his schedule, should be Dr. Alkhateeb. Cool.


Tonight we ae playing Aravas, my Dungeons and Dragons campaign that has had a little hiccup in getting going.  I have been in contact with all 6 of my players and they are all ready to roll.  Wish I felt better, but I will mutter through as best as I can for as long as I can.  Sitting up in the chair, I do not cough, go figure.  That is a good thing, no coughing means minor headache (I’ll pop a couple Tylenol).  Anyway, I am mostly set for this evenings session, I just have some npcs to name.  I know what the players are going to be doing, just don’t always know with or to whom.  I got a couple hours to fix that, or can name them on the fly.  Either way works out.


The guy I ordered the song lyrics on canvas from sent a sample, and the pic looked amazing.  I am so happy that Teresa found this, and I hope she loves it.  I am pretty sure she will.  I admit, I didnt go through every lyric to check spelling, but it looks good anyway.  Can’t wait to get it here and get it up above the bed.  Something for her to remember me by when I am gone.


Thursday morning is going to be rough.  I’m supposed to be at Dr. Wehbe’s office lab by 8am.  I haven’t driven with morning traffic in a long time.  It should be fun.  Normally it takes about 20 minutes to get there, I think I am going to give 40.  YAWN, 40 early morning minutes.


I did call my Dentist and got an appointment for next week Monday to get my permanent crown put in.  Hope nothing at Mayo tomorrow screw up getting to see my dentist on Monday, but you never know.


With the exception of Monday, I don’t believe I have anything else scheduled for next week during the day.  Too cool.  Oh wait, Thursday 2pm Blood Test at Dr. Wehbe’s lab.  Minor nuisance.  I have a light week next week as of now.  Will need it after this week and before the week after.  The week after includes baby shots and 2nd DLI.  But I’ll whine about that week when it comes around.


Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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