I’m dying. On the greater scale sooner and opposed to later. Not tomorrow or the next day or even next month, but one year is stretching it and longer than that is just gravy. When I got sick, they sent out the nukes, and the nukes couldn’t stop what is killing me. Now all they have left is guns, whats a gun going to due that a nuke couldn’t? And my body wouldn’t be able to handle more nukes. So I am kind of screwed. My doctor has said we are trying things now because they’d kick themselves later if we didn’t try them. There will be no miracle this time. I think in my life, I have used up my allotment of miracles. I told Teresa once that I wouldn’t live to be 50, now I am hoping to at least make 50. Those of you that know my past, who’d have thought I’d die from cancer after all the crap I went through as a kid? It’s not right, it’s nor fair, it’s bull crap is what it is. WTF, Myelodysplasia Syndrome is going to kill Jeff Campbell. Sad, but true.
And to save googling: Myelodysplastic syndromes (MDS) are conditions that can occur when the blood-forming cells in the bone marrow become abnormal. This leads to low numbers of one or more types of blood cells. MDS is considered a type of cancer. – American Cancer Society
That sums it up in a couple sentences. In my case, none of the blood-forming cells are creating normal blood cells, or at least not enough of them. So all my blood cell type numbers are falling. This means that soon, how soon is undetermined at this time, but soon I will be receiving blood and platelets to keep me alive. How long will they flog a dead horse? I don’t know. I guess it’s not my decision.
If the DLIs (Donor lymphocyte infusion) work. They should add months to how long I am going to live. DLIs add healthy white blood cells from the donor into the recipient (me) in hopes of the donor cells killing my remaining cells. Last test, after months of being 100% donor, showed that I was 5% me again, and my cells are cancerous. I need to be and stay 100% donor.
Beyond that I am not sure what Dr. Alkhateeb has left to try. He told me that he didn’t think there were any clinical trials that would help me. The fact that he is looking into clinical trials is a scary thing, we are way off the normal treatment path now.
I wrote this today to clear up any confusion. Seems some people just thought I was sick and I would get better. Well, that isn’t going to happen. I have a terminal case of MDS, and the best we can hope for is Dr. Alkhateeb and his cronies coming up with ways to extend my life.
But the bottom line is, I am dying.
Thank you for taking the time to read this, sorry for starting your Sunday out with such a gloomy topic.