Back to normal

I wrote yesterday’s blog entry really early in the morning.  Started it pre-6am.  It took me a long time to write, but everything in it was accurate and how I feel.  So, now that I got that out in the open.  I hope I can get back to writing an interesting (at least to me).


My bucket list trip is playing ping pong, first it was October, then March, now it’s the beginning of September and we are flying to Denver instead of driving to Oklahoma City.  At least that is the plan as of now.  Flying out of Des Moines on this short of notice is ridiculously expensive.  I got my mom and brother straightened out and their flights total are going to be like 100 bucks on Spirit Airlines.  My flights alone are over 5 times that for just me to fly to Denver and back.  I can fly to Chicago and meet them and then arrive with them.  Or I can fly hacker fare United there and arrive 1 minute behind them (assuming everyone is on time HA), then Delta out of there 45 minutes after them.   No waiting around the airport for 10 hours which is the cheaper choice.   Anyhow, I am going to have to talk to my brother and mother and see what they want to do.  All I know is that Jack in the Box has been added to the food bucket list.


Dr. Alkhateeb was funny giving his ok for this trip.  He started with the I don’t think it’s a good idea.  But since he isn’t going to be starting platelets infusions really soon, as long as its only a couple days he should be ok.  So we translated that to it was ok for me to go.


Tomorrow night, we play Aravas, my Dungeon and Dragons campaign, barring any weird problems from any of my players or myself.  It’s been over a month since session 1 and surprisingly everyone still wants to play.  Cool.  I thought for sure we would lose at least 1, but nope everyone is still on board.  It’s gonna take me a while to remember who is what, but it’s all good.  We’ll have fun.


And then Friday, should be the first meeting of the Gang West Marches game.   I think this first meeting is to just discuss what we are going to do.  So, I will definitely be there online to make sure I am heard.  Then, of course, I will miss the next week cuz I should be in Denver.  Then everything should go back to normal and I should be available on Friday nights.


Lately I have been feeling crappy in the evenings.  Tonight is being no exception.  And what made it worse is that eating dinner every night has made me nauseous.  Tonight Teresa had the idea of getting ahead of getting nauseous by giving me a Zofran before I ate.  Well, I have to say I am not as nauseous as I have been the last few days, but I am still nauseous somewhat.  I’m almost positive I am having an Upper GI GvHD episode.  It’s too consistent to be pretty much anything else.


Well, it doesn’t look like I am going to get to do Disney World or Happy Potter World in January or February.  I will be getting blood and/or platelets instead.  I would say FUN, but it’s not.  I am going to have to get a PICC line or a Hickman port, don’t want either, but hey I guess one of those is better than having to get an IV sometimes one, two or three times a week.


Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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