It was just another Mayo Monday

Teresa and I made the trip to Mayo today.  Started the morning off for me at 5:30am.  Teresa got up about 15 minutes later.  We were out the door around 6:14am.  We got home around 8 pm.  So, it was a 13 hour Mayo day.   I for one, am exhausted on top of my fatigue problem.

The actual day at Mayo started are 10:10am with blood draw, some of them really weird.  6 vials this morning.  Yucko, blecko.  I hate starting with labs first thing, but its always how it goes.

Then we met with Gabe our favorite Pharmacist.  He always gets the first run at asking the questions of whats going on.  So I got to complain about fatigue.  And complain about not being able to eat between 2pm and 7pm without getting nauseous.   Beyond that he went thru my med list with Teresa.

Then we had a 2 hour break.  BAH.

At 1:00pm we were called back first to visit with a very pregnant nurse Sarah.  They do random nurse rotations, we get Sarah about every 3 visits.  I didnt even notice she was pregnant before.  Either I am blind or she didnt start showing until recently.  But now she is very showing.   Her job is to ask all the nursey question.  So, I got to complain about the fatigue, and not the not being able to eat between 2pm and 7pm without getting nauseous.  And we talked about all sorts of other nurse to doctor type things.  And then a new doctor came in, Dr. Matin, she was very hard to understand.  Have no clue where she is from, but English was definitely a second language for her.  Dr. Matin asked doctor type questions, which are a lot like nurse type questions and we went over fatigue and eating yet again.  Oh nurse Sarah did me a solid by getting me a heated blanket cuz I was freezing.

Finally about 1:37 the big doc came in, Dr. Alkhateeb, himself.  He asked a bunch of questions that I had already answered.  And gave a big spiel about me not getting a blood transfusion because my hemoglobin was 8.6 and not below 8.  Personally with amount of fatigue I have and the time before we see him again, I would have went with the transfusion.  All this means is Dr. Wehbe and MOHA will catch me and give me blood probably next Thursday or Friday.  The big doc did however show concern that I may have some kind of infection so more blood and a nostril probe were ordered.  The nostril probe was done right away.

Then it was time for Baby Shots #3.  Only 1 shot in each arm.  And my arms hurt.  Nothing new there, just surprised there were so few shots.  Still feels a little weird getting baby shots, but hey gotta get em.

Then it was back to the lab to do the tests that Dr. Alkhateeb ordered when we saw him.  I forget what the particular test is called, but it requires them to take 2 big draws the fill 3 bottles each with 2 separate pokes of the arm.  Yep, 6 vials in the AM, and then 6 bottles full  in the pm.  Took about forever for them to take the blood in the afternoon but they got it done.

It was about 3:30 and we decided we were hungry.  So Teresa gave me a Zofran and 10 minutes or so later we ended up at Buffalo Wild Wings.  Zofran failed me, 2 bites and I was done in with nausea.  Teresa really enjoyed her meal though.  So it was a win.  (My sandwich was good later after we got home).

We got home around 8 o’clock.  I finally got to eat my lunch which had turned into dinner.  We watch an episode of the Worst Cook show.  And then I sat down to write this blog.

It was a long day.

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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