Not feeling so well today

Today I have felt like crap all day long.  From the moment I woke up till now (3:45pm).  I do not know why I feel like such crap, my hemoglobin should still be around 9 which is low but manageable.  One flight down and up the stairs to the basement with a slight detour to the garage freezer wiped me out, I couldn’t catch my breath for a good half hour. And now I feel worse.   I thought maybe it was anxiety, I’m dealing with a lot of that, but Xanax did nothing for me except make me a little drowsy.  I still feel like crap.


We are gonna try having me eat at dinner time as opposed to 8pm.  I think whatever was causing me to get nauseous has to be out of my system by now.  And if not, we are going with Taste of New York Pizzeria’s Calzones, which warm up beautifully.  All I know is I haven’t really eaten today and I am hungry.  Teresa will get a Calzone too.  ToNYP is a good restaurant and if you are near Jordan Creek, I advise you to search them out.  To look at their menu, you’d think they were expensive, but the portions are out of control.  So, if you are looking to feed the masses, this place gets my stamp of approval.


I told Jason yesterday that I won’t be able to play in his game even though I really want to.  This is just bad timing on my health’s part.  I don’t know when I am going to short on hemoglobin.  I don’t know when I am just gonna feel like crap for no reason.   I don’t know when I am going to feel great.  My spiel was, I just don’t know when I will be able to play and it wouldn’t be fair to the other players, and it wouldn’t be fair to Jason.  So, I graciously bowed out.  I felt like a total butthead for it too.


Still no word from Dr. Alkhateeb’s office as to when my next DLI is to be.  This waiting is causing me an undue amount of anxiety.  His office said it was a problem with my insurance.   Well, dammit, I can call my insurance and talk to my case manager and see what’s up, but I don’t want to go behind Mayo’s back.  Mayo and Dr. Alkhateeb have been good to us.  I know he is trying.  It’s just the lack of contact that is bugging me a whole bunch.  It has been 10 days since my last appointment with Dr. Alkhateeb.  He said he would get right on it and get back to us.  Maybe, I am being unrealistic and this stuff takes this long.  But I think if I called my insurance things would love quicker.


In the mean time, I am having weekly blood tests at MOHA (Dr. Wehbe’s office).  So far I have only had to get 2 units of blood.  However, the weekly tests are gonna miss me hitting 6.X which is way low.  So I am probably gonna up those to twice a week.  Just to cover my butt.  I will have to get a letter from Mayo asking MOHA to do the tests twice a week, but that should be no problem to get.  I like the lab people at MOHA, they do a good job and are in general friendlier than Mayo’s lab people.


I still have the Gang Friday Night Game.  On most Friday nights, they know all about my problems, so they understand that I can’t make every session.  And there is enough players than missing 1 isn’t then end of the world.  I still don’t think I am gonna DM, but I look forward to being a player.


Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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