A realization after some babble

Have spent most of the day/evening laying in bed with the lights out.  I am starting to feel weak and fatigued again.  Think my hemoglobin is dropping down into the do something about it range already.  Which would be a week early but not surprising.  My hemoglobin was 9.8 on the Wednesday after my headache at the ER.  It has bee dropping 1 point every 3 or 4 days for a long time.   We are 4 days out from that Wednesday, so I should be 8.8ish.  Not low enough for any doctor to do anything.  But if it dropped faster than normal, which is a possibility, I could be in the 7.8 range which may or may not get action.  Anyhow, this is why I asked Mayo to let me get 2 CBCs a week.  I will get checked on Monday and then again on Thursday and by Thursday I should be screwed enough to get blood again.   So, I should only feel crappy for about a week.  Joys of MDS.


I am leading a fairly boring life as of late.  Seriously, I have given up my Dungeons and Dragons campaign,  I gave up on Jason’s Eberron campaign cuz it wouldn’t be fair to everyone else if I couldn’t show up for 50% of the games cuz I felt like crap.  That leaves me with just the Gang Friday Night Game, when it runs.  Not complaining just stating the fact that when you gather a bunch of 48-50 year olds, life is gonna happen which makes the game not happen.  And I have stopped going to Mayhem Wednesday Evening games because I don’t want to get sick from complete strangers germs.  So, my gaming life went from really busy to not so busy.


I do mentally feel better that the DLI is scheduled.  I hope, seriously hope, it does what it’s supposed to do.   Cuz if it don’t we are back to 5 to 11 months.  But first I have to have at least 1 more bone marrow biopsy, just to find out how messed up my chromosomes are.  My PT53 mutation is not-mutated according to a recent blood test.  So that is something going right for me.  So, anyhow, I would rather have this DLI work and put the donor white blood cells to work and leave the remainder of my cells dead.  Turns out I am not blood type A+ actually, right now I am A+O+ mixed.  Sucks if you ask me.


I just realized that I am gonna have to watch the first episode of AEW:Dynamite on the TIVO.  Its coming on Oct 2nd, and I will be where there is no TV.   The Gift of Life House is a nice place, but they are in dire need of running cable thru both houses.  Too many days without a TV is most of what I remember from the 100 days we spent there last summer.  Oh well, I will record it here and watch it when I return.


I think I am getting depressed again, now that I think about things.  It could explain the weak and fatigued.  It could explain why I am so bored with my life right now.  And what sucks is I will have to reschedule my shrink appointment.  It’s scheduled for October 3rd, which is the day I am getting my DLI.  So, Monday is going to be a busy day I think.  Lots of phone calls to be made and a blood test to be had.   Yeah, try to get all the calls done on Monday.


Teresa wanted to do some apple orchard thing tomorrow that I was gonna drag my sorry butt to, that is until she looked up where the orchard was.  180 miles from here.  LOL, so much for that idea.


Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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