Have spent most of the day/evening laying in bed with the lights out. I am starting to feel weak and fatigued again. Think my hemoglobin is dropping down into the do something about it range already. Which would be a week early but not surprising. My hemoglobin was 9.8 on the Wednesday after my headache at the ER. It has bee dropping 1 point every 3 or 4 days for a long time. We are 4 days out from that Wednesday, so I should be 8.8ish. Not low enough for any doctor to do anything. But if it dropped faster than normal, which is a possibility, I could be in the 7.8 range which may or may not get action. Anyhow, this is why I asked Mayo to let me get 2 CBCs a week. I will get checked on Monday and then again on Thursday and by Thursday I should be screwed enough to get blood again. So, I should only feel crappy for about a week. Joys of MDS.
I am leading a fairly boring life as of late. Seriously, I have given up my Dungeons and Dragons campaign, I gave up on Jason’s Eberron campaign cuz it wouldn’t be fair to everyone else if I couldn’t show up for 50% of the games cuz I felt like crap. That leaves me with just the Gang Friday Night Game, when it runs. Not complaining just stating the fact that when you gather a bunch of 48-50 year olds, life is gonna happen which makes the game not happen. And I have stopped going to Mayhem Wednesday Evening games because I don’t want to get sick from complete strangers germs. So, my gaming life went from really busy to not so busy.
I do mentally feel better that the DLI is scheduled. I hope, seriously hope, it does what it’s supposed to do. Cuz if it don’t we are back to 5 to 11 months. But first I have to have at least 1 more bone marrow biopsy, just to find out how messed up my chromosomes are. My PT53 mutation is not-mutated according to a recent blood test. So that is something going right for me. So, anyhow, I would rather have this DLI work and put the donor white blood cells to work and leave the remainder of my cells dead. Turns out I am not blood type A+ actually, right now I am A+O+ mixed. Sucks if you ask me.
I just realized that I am gonna have to watch the first episode of AEW:Dynamite on the TIVO. Its coming on Oct 2nd, and I will be where there is no TV. The Gift of Life House is a nice place, but they are in dire need of running cable thru both houses. Too many days without a TV is most of what I remember from the 100 days we spent there last summer. Oh well, I will record it here and watch it when I return.
I think I am getting depressed again, now that I think about things. It could explain the weak and fatigued. It could explain why I am so bored with my life right now. And what sucks is I will have to reschedule my shrink appointment. It’s scheduled for October 3rd, which is the day I am getting my DLI. So, Monday is going to be a busy day I think. Lots of phone calls to be made and a blood test to be had. Yeah, try to get all the calls done on Monday.
Teresa wanted to do some apple orchard thing tomorrow that I was gonna drag my sorry butt to, that is until she looked up where the orchard was. 180 miles from here. LOL, so much for that idea.