There is hope

I’m sore from spending all day in bed yesterday.  Really stupid move on my part.  Haven’t done such in years, but I did it yesterday and am really paying for it today.   The sucky part is normally, you can just walk off the soreness and stiffness, but my right knee is really hurting lately and the longest I can walk is about 10 minutes which isn’t enough to get rid of the achiness. And I have tried walking several times and it seems like I keep going back to zero in trying to fix it.  Depression sucks, let me tell you, if it drags you down you are stuck in a bad place for longer than you want to be.

I feel like crap again today.  Beyond feeling sore, I have my cough back again.  But this cough is a little different, it started when I woke up and has been with me all day.  My normal cough starts in the evening.  My current cough started at nine am.  Woke me up as a matter of fact. It’s not a bad sounding cough, but an irregular sounding cough, at least irregular to me.  We tried the nebulizer on it, and it helped for about 15 minutes.  Bah, I better not be getting the flu or any such.

Today is the start of Jason’s Eberron Dungeons and Dragons campaign.  At least I hope it is.  I haven’t spoken with him since I bowed out and a good thing I did, because I would be saying today I am in no shape to play.  I wish him and the party good luck and much fun.

I think we are playing in the Gang Friday Night Game this week.  But I believe we are off next week.  Confusion sets in easy in my mind.  I know we were off last Friday cuz of Dennis DeYoung.  And I believe we are off next week cuz of Shannon’s grandbabies.  But I believe we are on this week, and I hope I am up for it but my health is heading down hill.

I have to say I am looking forward to the DLI on October 3rd. Yes, I have to be there on October 2nd for the check up.  But the DLI itself happens on the morning of the 3rd.  2 hours of fluids followed by however long it takes to deliver the DLI followed by 2 hours of fluids.  Oh, I forgot, before the 2nd set of fluids they give me lasics so I have to pee a lot.  But obviously that is NOT what I am looking forward to.  What I am looking forward to is the possibility that my Donor white cells will wipe out my remaining cancerous cells and repair my chromosomes.  That is all the DLI is supposed to do.  Fix what’s wrong.  And some time shortly after this DLI I will have another bone marrow biopsy to see if it worked.  There is hope.

The kicker here is I might need more DLI material.   That would come from my DONOR.  I hope he says he will donate more.  My life might very well be in a 20 year old German man’s hands.

I’m pretty sure the 6 – 12 months is out the window now.  I think with the way things seem to be going (Now that they are going again), I think its a conservative estimate.  So, that will mean on August 8th, 2020 Jeff’s Still Not Dead Yet party will be taking place.  Where it happens is still up in the air.  Mom’s house, wherever that ends up being.  We will make do with wherever she ends up buying.  It’s all good.

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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