its DLI week and I am still in a good mood

Woo Hoo, I am still in a good mood.  Not the great mood that I am normally in, but a hell of a lot better than I had been.  I was worried it was going to be a really long depression but nope, about a week total and I am on the mental mend. .


Tomorrow I find out if Dr. Wehbe wants to give me blood.  Yeah, my hemoglobin will be that low and the tiredness, fatigue, confusion, and shortness of breath are all in place already.  He will have me talk with a nurse, who will make arrangements for me to get blood, probably 2 bags.  Teresa and I spoke about it and if Dr. Wehbe thinks I need blood then I will get blood.  Let Dr. Alkhateeb react however he is going to.  We couldn’t think of it messing up the DLI in any way.   So, Dr. wehbe’s call on whether I get blood on Tuesday or not.


So, in all likelihood Tuesday is 5-6 hours in infusion at Mercy Medical Center.  Dollar says they’ll want me there at 8am again.  At least they’ll feed me during it.  They tell me some people can’t eat and get blood at the same time.  Silly people.  Anyhow, not how I originally planned my Tuesday, but hey, if I need blood, I need blood.  And if for some reason Dr. Wehbe chooses not to give me blood on Tuesday, Tuesday will be me feeling like crap all day.


Wednesday will begin with the long drive.  At least we do not have to be there until 11:50am.  Thank the gods for caring schedulers.  After we get there it’s a rush blood draw, then run to the pharmacist appointment.  Then an hour and a half during which will could possibly grab lunch or we will watch TV in the transplant lobby.  Then an hour or so of Nurse and Doctor appointments.  A normal visit to Mayo.


Thursday is DLI day.  Again no idea how big the bag is, so no idea how long this is gonna take.  Just whatever it take +4 hours of fluids.  I’ll have my laptop with me.  I’ll keep busy.  Then we have the long drive home.


Friday I plan to go see Chris (the PA), I have a favor to ask of him.  It’s a personalish favor that I don’t want to get into here.  But he’s a good guy, he’ll do it, so I am not worried about it.


Then Friday Night, I should be feeling good enough to play in the Gang Friday Night Game. I have no idea where they are or what they are doing, but hey, it’s all good.  My tempest cleric is ready to role.


Then next week, maybe on Monday the 7th, I have a shrink appointment.  I made the change of appointment without writing down the new one.  DOH!.  Oh well, they will text me to remind me.  I like Dr. Eastin, should be a good visit.

And of course, on Monday I will have my customary CBC test, which should have good numbers.


Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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