Mostly a wasted day

Well, today was a waste of a day just like I expected.  I can’t believe that insurance actually requires a patient/customer spend a day before getting a  DLI to hear all the same crap over and over every time they want to do a DLI.  But at least this time the information was delivered by a nice young doctor whose name totally slips my mind.  Anyhow, he asked all the same questions and gave all the same info as last time.  Expect this, look for that.  Yeah, yeah, we aren’t stupid. But according to Dr. Alkhateeb I better get used to it.

Well, I am disappointed in the amount of hemoglobin I got from the infusions yesterday.  Today I tested at 9.3 last time I got an infusion I was over 10.   That leaves me getting another infusion in 1 and a half weeks if this DLI doesn’t do some magic.  Trust me, in less than two weeks I will be getting another infusion.

Let’s talk DLI magic.  The bag itself is the same size as last time.  Which means it is really small.   It’s supposed to somehow magically make my Hemoglobin climb.  The last one did seem to a job on my platelets which are still climbing.  So maybe it will work.  I won’t hold my breath.

Today Dr. Alkhateeb spoke of chemo and monthly DLIs.  I DO NOT WANT CHEMO AGAIN and the idea of living month by month on this poor guy’s donations, seems ridiculous.  But I am gonna do whatever he says I have to do to survive.  No matter how much I hate the idea.  Maybe, he will listen to reason.

So, tomorrow I get tiny DLI #2.  Starting around 10am, I will be getting 2 hours of fluids, then about 5 minutes of DLI, then another 2 hours of fluids.  Then we will get to leave to go home, home around 7pmish, if my figuring is correct.

We are spending another night at the Gift of Life House.  Not exactly the Ritz.  But cool enough considering the price.  The only real complaint is they don’t have tvs in the rooms.  But we make do as we can do.  Watching Highlander on Teresa’s IPAD.  The 1st movie stands well over time if you just pretend the 2nd movie never happened.

Oh, by the way, the Gift of Life House appears to have fixed their internet problems.

Anyhow, you found another short blog entry from me.  I just don’t have much to say right now.

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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