the hemoglobin game

If I don’t need blood tomorrow, I am really gonna need blood on Monday.  I can barely walk across our house without being winded for 10 minutes.  I am super-pale, I believe white takes on a new definition for me.  And I am super-fatigued.  Wiped-out.  Totaled.  Put them all together, my hemoglobin is down.  The question is will it be 8 or less than 8.  At 8 I don’t get infused and have to wait for Tuesday.  Below 8 I get infused on Friday, the coldest day in recent history. 40 something.  I can always put on a heavier coat.  Heh.  It’s gonna be a close call whether I get infused Friday or not.  We shall see.


Today was almost another completely lazy day.  I slept late.  But I did get the dishwasher unloaded (to a 20 minute huff and puff session trying to get my breath back).  So it wasn’t a completely lazy day, just a mostly lazy day.  It sucks not being able to do normal things around the house without getting winded.  Basically that goes for everything 2 days after blood infusions.  Yep, for 2 days I feel borderline great, then it is downhill worse and worse until I get my blood infusions again.  This is a sucky existence, but it’s better than being dead.


I still haven’t called my insurance company about the odd bills we are receiving.  I have 3 of them now.  Totaling around 500 bucks.  I have no intention of paying them, so this should be an interesting conversation.  I mean that the insurance company approved everything for the transplant and this is sill dragging on and on in perpetuum.  So these 3 bills should be no brainers.  I just have to get off my lazy butt and call my insurance company before 5pm Eastern Time.  Perhaps that is the project for tomorrow. Something to make tomorrow not a totally lazy day.


Teresa won a Customer Service Award today at work.  Funny thing is she doesn’t deal directly with customers.  But I am still proud of her, even if she has ran out of room on her desk for customer service awards.   She’s just gonna have to start bringing some of the old ones home, not that we really have a place for them either.  But we could possibly make room.


I miss playing Dungeons and Dragons.   My hemoglobin cycle is all messed up and normally by Friday I am feeling pretty crappy.  So I don’t want to play.  Then on Tuesday I feel pretty good but by Friday I feel rottenish again.   Makes it hard to play on Friday nights.  And they are my only viable option for nights.  Wouldn’t dare try running a game right now.  And with my days of feeling good/not feeling good, it’s all messed up for trying to find a game to play in.  I know if I felt better, there would be at least 2 games I could get in.  Bah, maybe, eventually I’ll get feeling better on a regular basis.  Until then, I will just be miserable here in the corner and wish I could play.


Mom gets her keys to her new house in 15 days.  I’m so happy for her and my brother.  I hope they get my brother’s house fixed up and it sells quickly.  Carrying 2 mortgages would be rough on them.  Would be tough on just about anyone who wasn’t rich.  But anyhow, mom gets her house in a little over 2 weeks.  I can’t wait to see her house, hopefully for Thanksgiving.


Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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