lost too much weight so gimme blood

Tomorrow we find out if I need blood.  Silly really, yes I need blood.  Tomorrow we find out by how much or if the 2nd DLI caused my hemoglobin to increase, which is not an impossibility.  My symptom list says I need blood though, so I will go with that.


OK, I haven’t spoken about my weight here in forever.   As some of you may remember I was shooting for 205.  Well, tonight I weighed in at 203.6.  Now I gotta figure out how to put on a couple pounds.  I really want to land in around 205 and 203.6 will get me in trouble at Mayo.


Speaking of Mayo, someone in the transplant department scheduling department obviously doesn’t  like me.   I had a full day scheduled for various things.  So instead of scheduling the over draft the day before late in the afternoon to give us a break she scheduled it for the day after at 7:45.  ICK ACK YUCK.  We got a while to straighten this out, but still common sense would say no one wants one appointment at 7:45am the day after they have a bone marrow biopsy and a tooth removal.


My family won’t get to move in on the 25th although they might get the keys.  Have to wait for the new linoleum and carpet to be installed.  So they are shooting for the 2nd week of November, I think.


Hopefully Thanksgiving will be at their new home..  Ruby’s house sits everyone but it feels too formal for me.  I prefer a relaxed atmosphere for my Thanksgiving munching.


This coming bone marrow biopsy is important.  If my chromosomes are fixed, it means no chemo.  If not, that means chemo starting soon.  I hope to make Thanksgivingfest and Thanksgiving BEFORE I start chemo.  Ultimately it is my choice.  But Dr. Alkhateeb sure doesn’t make anything feel like a choice.  EVER.  Well, I am gonna take a stand on this.  2 weeks of when I start chemo is nothing.  He will just have to cope.


Hopefully the heater repair guy can get out here tomorrow morning, otherwise we have to wait till Wednesday.  Teresa left them a message stating I have cancer and we wont be available after 3pm Monday until 8am Wednesday.  So let’s hope for Monday morning repair guy.


Author: Jeff Campbell

I am 48 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (26 years). She has stood by me thru a lot of crap.

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