Things seem to be going pretty good all thing considered

Well, the little baby Lexapro pills I am taking have helped considerably with my depression without making me go manic.  So cheers to Dr. Eastin and his knowledge of thing psychiatric.  I was heading towards doom and gloom and now I am in a pretty good mood again.  So I am happy about that.


Talked with mom about her house situation last night.  According to her, according to her lender dude, it’s all good.  There is supposedly nothing to stop it from closing on the 30th.  I don’t know jack about Indiana real estate law, it’s different than every other state.  So, if they can close by the 30th, more power to them, and great for mom.  So, I am gonna stop reading my brother’s panic Facebook post and always go directly to my mom to find out what is going on.  Should have been doing that all along.


I remember when I could walk an hour and not hurt or be winded.   Those days are way in the past.  Today I walked 20 minutes and it took me 40 minutes to recover.  I am officially pathetically out of shape.  But I am gonna work to fix this.  Right now its 20 minutes, as soon as I can I will move up to 30 then 40 and eventually get to walking an hour again.  As for the knees and pain, I got Tylenol and that should do the trick, along with wearing my knee braces.  I should be able to get back in some semblance of shape.  Just got to start out slowly.


Let’s spend a moment talking about weight. 202.8 today.  Trying to get back up to 205 or so.  I don’t want to be too light for Dr. Alkhateeb, he will lecture me.  And I don’t want or need a lecture on my weight.  By the way, before my transplant I was 234.  So I have lost a lot of weight and where physically I have no idea if its helping any, mentally I feel great about it.  I would have never thought of losing this much weight as possible.  I bet my donor is a lightweight guy.  Just a thought.


Speaking of my donor and Dr. Alkhateeb…  I wonder if Dr. Alkhateeb’s people have had any luck reaching out to my donor for more dli material.  It seems, according to the doc, that I am going to need these dlis for a long time and they can only come from one place, my donor.  And Dr. Alkhateeb said he’d get the people on it asap.  Would be nice to a status.  Perhaps I will message them and ask.  But I will tell you my biggest fear right now, my donor saying no or worse, my donor dying in some kind of accident.  But either of those is very slim chance.  So I try not to think about it.


Other than being horribly out of shape.  I feel pretty good, having gotten blood on Thursday.  Low hemoglobin sucks.  And the symptoms that come with it suck too.  Fatigue-permanent want to sit on your butt and do nothing.  Shortness-of-Breath-You know where you can’t seem to catch your breath for anything.  and Dizziness – the worst, when you aren’t sure up in up or which way is which.  Those are my 3 major symptoms.  Luckily my rate of hemoglobin drop has decreased.  So that should mean less blood for me.  The objective is no blood needed and no platelets needed either and my white blood cells stay strong.  I was there a year or so ago.   I want to go back to that.


Author: Jeff Campbell

I am 48 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (26 years). She has stood by me thru a lot of crap.

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