I’m all messed up

I skipped my CBC on Monday thinking, I am good, don’t need one till Thursday only to find out the office I get my blood drawn is closed this Thursday for an unknown (at least to me) reason.  So I get my CBC and other tests on Friday.  And it’s no longer MOHA that I go to but Mission Cancer + Blood.  Yup, that is what they are changing their name to.  No longer a cure nickname, gotta say it all.   Mission Cancer + Blood.  Oh well, as long as Dr. Wehbe gets to write me scripts for blood they can call themselves whatever they want.  Just wish they would have come up with something with pronounceable initials.  MOHA stood for Medical Oncology and Hematology Associates.  See what I mean?

Dr. Wehbe also tried to sabotage me with the scheduler.  She was told not to schedule me before 3.  I can only get there before 3 if I am feeling sick, a deal made between Teresa, Teresa’s boss, me, and Dr. Wehbe.  Then I will be there at 9am with plenty of time to arrange things that need arranging {Blood infusions}.  Anyhow, I left the poor new scheduler with my 4 o’clock appointment and a message to Dr. Wehbe, “That I would see him early if I needed him early.”  He should understand.

The A Blood they are giving me isn’t acting the way O blood used to.  O Blood used to make me feel wonderful and alive again.  A Blood is making me droopy and tired.  I’m gonna try to talk to Dr. Wehbe on Friday about this.  It’s weird.  My blood type changed to A from O with the transplant.  When they gave me O Blood recently I felt great.  But since my blood type has calmed down into A, getting blood is keeping me alive but that is about it.

I think I need to go back on the hydro-cortisone as much as I hate the idea.   I am stuck right around 200 pounds and I don’t think I can eat anymore.  Today I had 17 pizza rolls and some candy.  And got up to a big whopping 201 pounds.  I do plan to eat again tonight, Mexican Pizza.  Still don’t think it’s gonna help much, but every calorie counts, or so every website tells ya.  I just am not getting hungry as much as I used to, I can eat about 2/3rds of what I was eating.  Guess what, if you cut what you are eating by 1/3 you will lose weight.

Drinking water has become a reissue again.  I am having problems drinking 4 bottles of water a day.  3 bottles no problem its the 4th I have to slam down right before bed.  Then I am up 10 times a night taking a leak cuz of my Benign Enlarged Prostate.  I am getting the 4 bottles down, but it’s being really difficult.  By #4 I feel like I am drowning sometimes or that I am totally waterlogged.  But I will keep forcing it, don’t want a lecture and an IV of water from Dr. Alkateeb.

Oh, I got up to 20 minutes walking.  Teresa said I looked horrible after I was done.  I could hardly breathe.  No wonder I looked horrible.   Took me about 20 minutes to recover and begin looking normal.  But I’m trying, tonight I will walk 20 minutes again. And hopefully I won’t be as winded or look that bad when I am done.

So whereas, normally I am feeling pretty good.  In reality I am not eating, drinking, or moving normal.  I really do hate the thought of going back on hydro-cortisone, but it would help with the eating and the drinking.  The only thing that would help the walking is a new pair of knees.  It’s the pain that is keeping me down right now.  I wear a knee brace on both knees, they help a little.  I’d go get steroid shots but Dr. Alkhateeb said no to those for now.  So, blah, I don’t want to do on thing that’ll help and I can’t do the other cuz the doc said no to what might help.  So goes my life.

Due to Mayo’s great scheduling, Teresa and I are not only missing Thanksgivingfest with the Gang, but we are also going to miss Thanksgiving with my family.  They have me scheduled for stuff Monday, Tuesday and Wednesday before Thanksgiving Thursday.  Talk about blowing Thanksgiving plans out of the water.  Oh well, Teresa and I will have a nice Thanksgiving just the two of us.  Memories of old times when it was just the two of us.

They are talking first real snow next Tuesday.  I hope not.

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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