Feeling rotten

I sent Dr. Alkhateeb’s team a note about my weight loss and another about my hypersomnia.   They are gonna check my cortisol level again and probably put me back on the pills that I hate.  Joy o Joy.  But those pills, hydro-cortisone really do help me eat and help me not sleep quite as much.  So, maybe the hassle of taking said pills is worth it.  Teresa is not looking forward to cutting up the pills again and they taste pretty bad.  I was on them from shortly after transplant till Christmastime the first time around.  Can’t stay on them forever because they are a steroid.  This time I am sure will be Halloween till mid-summer.  Yay Rah.  Not happy about this.


Feeling rotten is the correct term right now.  All the symptoms I have mentioned before are back for another visit.   Which means its almost blood time.  My hemoglobin was 8.something on Friday.  Will be low 8.something on Monday.  And 7.something on Thursday, which is why I made my appointment for 9am.  This gives them plenty of time to get me into the infusion center either on Thursday or Friday.  Either day will work for us, and showing up early should make Dr. Wehbe and staff happy.


You know I feel bad when I pass up a Halloween One-shot Dungeons and Dragons game hosted by Jason.  He asked me about a half hour ago, I had to say No, I couldn’t.  I can’t sit for that long.  I get fatigued really quick and have to bail.  That is not fun for me, the other players, or the Dungeon Master.  It’s the same reason I haven’t been playing on Friday nights.  And the same reason I won’t be playing any games in the near future.  It sucks, I know, it sucks for me too.  But until and if Dr. Alkhateeb gets my hemoglobin up in an acceptable range, I’m out of gaming.


Apparently Jim’s call the other day wasn’t completely accurate.  Seems there is still an outside (Very outside) chance that the loan will go thru.  Seems odd to me though, that they don’t know on the 27th if the loan is going to be approved on the 30th.  Anyhow, Jim posted a 4 day countdown on Facebook yesterday.  4 days until they know one way or the other.  I repeat myself from the other day, the loan officer they got referred to sucks.  And if they try this again in the Spring, I hope they go with someone else.


My great plan to walk has fallen to the wayside.  20 minutes is about all I can do and then it takes 20-30 minutes to recover from that.  My lungs revolt, my knees revolt, heck, my whole body revolts and I crawl back into bed having trouble catching my breath.  I had hoped to be up to 30 or 40 minutes by now, without the recovery time.  HA.  I was fooling myself.  I guess I am sicker than I thought.  Really in bad shape.  I am trying, but trying and getting nowhere is super frustrating.  I just want to be able to walk like a non-sick person, I don’t think that is too much to ask.


Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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