Mayo beat me up

Mayo was brutal to me.  The most physical pain I may have ever expected.  The funny part is that what hurts the most is where the baby shots are.  A place that people kept grabbing yesterday. I got fingertip bruises on my shoulder from people grabbing it After I told them how painful the baby shots are. Seriously, the shoulder I got the shots in hurts more than where they removed the tooth and way worse than the bone marrow biopsy spot/  Right now I can hardly move my right arm.  I took another pain pill.  We’ll see how well it works for me when the pain level isn’t quite as high.

Anyhow, should have known things were gonna be off when the Transplant House didn’t call on Tuesday.  We ended up calling them around 3 to find out they were full and they were gonna put us in a hotel.  The Kahler Grand ls a nice hotel… or will be when they get done with all the reconstruction.  The room we had was spacious and quiet.  Their bed was a rock though.  Very hard.  Difficult to sleep on. So, if the Transplant House is full again, I doubt we will stay in the Kahler Grand.  It’s a shame that such a nice hotel had so uncomfortable beds.

Waiting on the hotel took just about as long as getting the baby shots.   We were waiting for our room confirmation email.  It finally came when the nice baby shot nurse was just about to stick me.  Teresa tried to forward the email to her phone, but the wifi at Mayo just sort of sucks.  And in some of the buildings you can only get 3G.  Makes for a game we play trying to get wifi and then the wifi drops then you get it back until it drops again.  It’s a vicious cycle and can be very annoying especially when you are trying (and trying is the right word) to check your email or worse your Mayo schedule.

Baby shots didn’t hurt going in, but OMG did they start hurting about four hours later.  I have a whole new respect for babies getting shots.  Even if they do get the shots in their legs.   Still has to hurt like crazy.  But I am now done getting baby shots.  One this pain goes away I will not have to worry about ever getting a baby shot again.

The next morning started with blood tests.  Same old, same old, my cortisol level was 18 which means I don’t have to go back on the hydro-cortisol.  My platelets were 123.  WOOT, no problems for them to remove the tooth.  Everything looked good except my hemoglobin, which didn’t look bad but I Had gotten a blood transfusion less then then a week ago.

then I went and had my bone marrow biopsy.  2 things, I had it on the opposite side cuz of the baby shots.  And wow the bandage stayed on for 24+ hours.  And it barely hurts. I could go for more bone marrow biopsies if they all felt like this one.

Then we met the new pharmacist.  All they do is go over them med list and ask if anything has changed.

then we met with a dietician.  Who told me things I already knew, but reput them into my mind.  She told me to treat food like medicine and just eat.  And eat several small meals a day.  She also took me off water and wants me to drink more juice.  She was a real nice lady who really knew her stuff.

Lunch was had.

a very rushed nurse visit and a very very rushed fellow visit (Didnt see Dr. Alkhateeb) In order to be only a little late for my tooth extraction.

The tooth extraction went well, I think.  The whole thing would have totally freaked Teresa out.  4 shots, 15 drilling, and a bunch of cracking sounds.  But an hour after he started the Oral Surgeon announce he was done, then he drilled and such for another 15 minutes and announced he was done again.  lol.  I am so glad that tooth is gone.  No more food getting caught there, it was time for it to go.

Then we drove home in the snow.  Took us nearly 5 hours to make the 4 hour drive.  But we made it home, Teresa made me banana pudding.  All is well.

So, I am in a bit of pain.  But nothing I can’t handle.

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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