Dr. Shorty let me down

Dr. Wehbe or Dr. Shorty, whichever you know him by let me down hard today.  I miscalculated my hemoglobin and was off by 5 days.  I made no calls to arrange blood transfusions on Monday, I just said I wouldn’t need one today.  A casual conversation with the scheduler got the Monday thing going. I was wrong, my hemoglobin was 7.5 today, normally instant blood transfusion.  Dr. Wehbe said to send him (me) home,  I will be getting blood on Monday.  Not Friday or Saturday, but I have to wait until Monday.  By then my hemoglobin will be in the high 6s.  I’ll be lucky if I am able to walk.  I’ll be lucky if I an not too confused to get registered.  I’m gonna be in real bad shape.  And it’s all Dr. Wehbe’s fault.

We tried a new restaurant for lunch called The Other Place.  Teresa gives a raving review to tater tots, French fries, and chicken strips.  I say my salad was pretty good, always nice to find French dressing.  But their Lasagna was flavorless and worse the bottom layers were filled with mushrooms.  BLECK.  But I am willing to give it another chance.   They had several items including PIZZA on their menu that I would be willing to try.  Anyhow, it’s right next to Dr. Shorty’s office.  Good place for us to grab lunch/dinner after blood draws.

Got the results from the bone marrow biopsy.  The results are not pleasant.  The only abnormally good results is that my PT53 gene is not mutated.  The rest was basically all bad.  This means, more DLIs in hope of triggering the mutations to go back to normal.  Dr. Alkhateeb actually did call today.  He had hopes of me getting into a clinical study at Mayo, but turns out I am not bad off enough cuz my PT53 gene in not mutated.  So, DLIs and possibly chemo is what my future holds.  Starting the 1st or 2nd week of December.

Now, my mom and brother want to come visit the 2nd week of December.  Jim is choosing to work the rest of the month due to holiday pay and overtime… makes for a HUGE paycheck.  Anyhow, we’ll figure something out once the days of my DLI are concrete.

I won’t be playing in the Gang Dungeons and Dragons or whatever game their running this week.  No surprise there, I feel kinda awful and its just gonna get worse.

Sorry for the real short blog.  Some day I will have more to say again.

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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