My doctor blew my mind today. He told me of all his patients who have come out of remission (had a relapse) with my specific diagnosis I am the only to have survived this long. Which means, by all rights, I should be dead by now. I thank you all for your prayers and good thoughts. I don’t much believe in God anymore, but prayers can’t hurt, and good thoughts are always appreciated.
I start chemo in 2 weeks, 3 days of chemo then 4 weeks, then 3 days of chemo then 4 weeks, on and on perhaps perpetually. I go to Mayo every 4 weeks too, starting at week 3. And I have a bone marrow biopsy scheduled after the 4th month of 3 day chemo treatments. Luckily, I get to have my chemo here at Dr. Wehbe’s place.
I still don’t want chemo again, but I have read up on the chemo I am being given, it’s a light chemo. I will not lose my hair. I will not have mouth sores. So, I am not nearly as opposed to it as I was.
Not sure why my donor backed out, it’s ok though. If I need of bone marrow blast, he would most likely still be able to do it. At least that is what we hope.
If worse comes to worse. And I am still alive for this. Dr. Alkhateeb said we can always do another stem cell transplant. Chemo wouldn’t be as harsh as chemo was for the first time. My body cant take another round of really harsh chemo. Anyway, if I had another stem cell transplant, I would have 3 birthdays. Mind boggling. And my blood type could change again. Heh.
I told Dr. Alkhateeb that I was gonna live and dammit that is what I plan to do.
And my Still Aint Dead Yet party on August 8th, 2020 should still be on. Yeah, buddy