Chemo round 2 on Monday and I do not care

Sorry again for taking so long of a break between blog entries….  I just have nothing to say or add to what I have said, so I don’t want to waste your time.  That being said, I got some stuff to say today, so I am writing this blog entry at 8:35pm about 20 minutes after we got home.


Chemo round 2 starts next Monday and goes Monday, Tuesday, Wednesday and then I am done for another 4 weeks.  Yesterday we say Dr. Wehbe.  He was very excited about my results from the first round of chemo.  My hemoglobin was up, My platelets were up.  Like seriously up.  It is a very rare occurrence for a MDS patient to have that kind of reaction on his first chemo run.  He was very excited about this.  This is the longest I have been without having to have blood product since I started getting blood again.  Very exciting news.


Today was a trip to Mayo to see Dr. Alkhateeb.  He too is very excited about my results.  He pointed out again that he is in uncharted waters with my MDS, and is just happy for me and happy he gets to continue the story.  By all rights, I should have died a year ago, instead I am doing very well.


The only event on the trip up to Mayo was a detour on some really small county roads.  That added about 15 minutes to our trip time and made me 5 minutes later for labs.  Considering there was only 1 other person waiting for labs at the time, it was no big deal.

The trip home was uneventful until we got just north of Story City when we first started seeing snow and it just got worse the further south we got.  Almost everyone slowed down for the snow.   It wasn’t much but it was accumulating rather quickly.  By the time we hit Ames, Teresa decided we were taking the back way.  I was concerned that the snow would be worse on highway 169, which we drive the last 40 miles on.  Well, Teresa was right, the 30 was clear of snow, and the 169 had nice ruts through the snow, so it took us a little more time to get home, but we made it safe and sound.


The weather storm report is saying we should get a total of around 6 inches here by tomorrow evening.  Places southeast of us are supposed to get a foot or more.  Yeah, winter may have finally arrived.


Now I get mushy.  I love Teresa with all my soul.  Without her I would not have survived all the maladies that have plagued me over the years of our marriage.  She is the greatest wife that I could have ever hoped for.   She is my everything.


So anyway, what I am doing every day when I am not in chemo or at a doctor appointment, is playing Skyrim Special Edition.  Basically from when I wake up to when I go to bed.  Yeah, it is a sick addiction, but I am having lots of fun.

That being said, I took a break from my level 41 Khajiit Warrior, I just didn’t know what else to do with him at this time, so I have been playing other characters.

My latest character is a Dark Elf Destruction School Wizard/Warrior (she mainly casts spells, but carries a sword in her off hand).  I am having a great time playing something different for me.  I have no clue what level she is right now, but Destruction School takes forever to level.  So she might be around level 12 or so.  Having fun right now, might not have fun later.  She is a good distraction at this time, so I will play her until I run out of ideas for her or I get frustrated with how slow she levels (and then delete her).


I am still not sleeping,  I go to bed between 11pm and Midnight, then wake up between 3:50 and 5am.  Most of the time right at 4am.  And I am not really napping.  I suffer from insomnia on a semi-regular basis, but this is different as I can go to sleep just fine….it’s just that I wake up and am unable to fall back asleep.  So far Ambien and Restoril have both been failures at helping.  I think we are gonna try Sonata next.  Something has to work.  I see my shrink on the 28th, maybe he’ll have an idea.


That’s it.  Video time.

Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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