Just gotta say it again Cancer Sucks

Well, I am beginning to suck at writing these blog posts on a regular basis cuz my life has turned boring with the return of my cancer and subsequent treatment.  I apologize to anyone who wants to hear from me on said regular basis, I am hoping that this 4 month course of chemo (2 months done) do the trick and I go back into remission so I can have a life again cuz this life sucks.

I finished the second round of chemo on Wednesday.  The only side effect of this chemo that I have experienced is slight nausea a couple times.  Dr. Alkhateeb called it a “Baby Bump” of chemo and I can see why.  It takes about an hour an 45 minutes to do the whole thing and I get the chemo only for 3 days out of every 4 weeks.  Not bad, not bad at all.  Only got more months to go and then another BONE MARROW BIOPSY to see if the problems have been fixed.

Really hate the drive to and from Mayo.   Yeah, Teresa does the driving, but still I am in the car.  3 hours and 50 minutes each way thru nothing.  Corn and soy bean fields are about all we see on the whole trip.  We only drive through one city (we drive by the rest) and that is Austin, Minnesota.  Nothing to write about there, just the speed limit drops for a while.  The rest of the trip is farmland.

I have MDS (Myelodysplastic syndrome) and I had a stem cell transplant from which I have Excessively Dry Skin (I had really dry skin before, just picture it drier for those of you who really know me) as my form of Graph vs Host Disease (or GvHD for short).  Why is it so hard for the nurses giving me chemo to grasp this?  I lotion before going to the place where I get the chemo (Dr. Wehbe’s office), my skin just dries out on the way.  Lotion lasts maybe a half hour and its a 20 minute drive to the clinic.  So by the time they get me checked in and called back, my arms are dry.  I have explained my GvHD to at least 6 of the nurses, you’d think they would talk and I wouldn’t have to keep explaining it.  Anyway,  my skin is dry, it will probably always be dry, I’m just tired of explaining it to people.

Teresa just got over the flu or something like the flu and luckily I didn’t get it.  She was sick for about a week until she started taking an antibiotic.  Very sick if I have to say it.  She actually missed work because of being sick,  I think work is where she picked up to illness in the first place, she thinks it came from Dr. Wehbe;s office, as sometimes sick people come to visit at the cancer clinic and don’t even think about it.  Either place is as likely as the other…  Just glad I didn’t get it too.

That being said I still have other issues going on.  My backwards insomnia, going to sleep just fine, waking up at ungodly hours.  We are now trying Sonata, we went thru Ambien and Restoril with no luck.  First night of Sonata I went to bed at 9pm (I was tired from not sleeping) and woke up at 2:30am.  Tonight will be try number 2,  I will force myself to stay up later and see if I can’t sleep for 6 or more hours in one stretch.  Sure would be nice to sleep thru the night again.

My cough is still going strong.  I cough virtually every morning and every evening.  It’s wet, it’s dry, it is sometimes productive, but mostly not.  It sucks.  It sucks very much,

My drooling problem seems to be getting better.  I can go the hour and 45 minutes without really drooling while I get chemo.  But if I am not actively trying not to drool, I find that I drool.  It is a consistent thing.  I have 3 doctors and a PA and a Pharmacist all stumped as to the cause.  It is annoying to say the least, but it could be worse, I am sure.

I have 2 character in Skyrim who have passed level 40.  Level 41 and level 44.  They are both Khajiit.  One if a pure dual hand fighter and the other is an actual thief.  I am sure the thief has the 50 pickpockets for the achievement, now just looking for locks to pick.  Finding 50 people with pockets was easy, finding 50 locks is a chore.

Still finding it difficult to play an Orc past level 25 or so.  They tend to get BORING fast once they hit level 20.   And I have had no luck with the other races either.  For one reason or the other, I haven’t been able to get into playing any other races..  However, I still have Redguard and Imperial to try.  So I haven’t given up on finding a third race I enjoy.  I love Khajiit, I like Orc, it’d be nice to find a third.

That brings me to the end of this blog post.

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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